Self-Advocacy: Becoming an Active Member in Your Community

If you have ever stood up and defended the rights of yourself or others you were acting as an advocate.

Self-advocacy means taking the responsibility for telling others what you need and want in a respectful and direct way.   Anyone can be a self-advocate and while speaking up for you or someone else can make you feel empowered, independent and more in charge of decisions for your life, it is not always an easy thing to learn how to do. It takes time and practice.

Good self-advocates are informed about the topic they are sharing with others.  They speak clearly and calmly and they listen to others and consider the information that they are hearing as well.

Times that you might need to be a self-advocate could be:

  • In your IEP meeting if you are in high school
  • When you ask for accommodations for classes in high school or college
  • Asking for accommodations on the job.
  • Asking for assistance and accommodations so that you can be involved in your community.

Things you need to know to become a better self-advocate:

  • Understand your rights and responsibilities.
  • Make decisions based on what you want or need
  • Say yes or no
  • Know that its ok to change your mind
  • Know that its ok to make mistakes
  • Express your feelings in a safe and reasonable way
  • Know who your trusted support persons in your community are that you can ask for help when needed.
  • Be safe
  • Be treated with dignity and respect at all times
  • Learn to be assertive without being aggressive or disrespectful

It is important to have confidence in yourself, you know more than you may realize.  Being prepared is important and some things to remember are:

  • The goal is the wellbeing of the person you are advocating for
  • Communication skills, respond don’t react. Avoid seeing others as the enemy.  Try to be diplomatic
  • Learn how to read IEP
  • Maintain good records and request everything in writing.
  • Take notes or have someone take notes during meetings.
  • Don’t attend meetings alone. If you can bring someone with you for support and to help take notes, it really helps.  Try not to attend meetings alone.
  • Remember you are teaching by modeling good behavior and effective communication. Your efforts won’t just affect yourself and/or your loved one, but the community as whole as well.
  • Assert yourself with common courtesy but be firm. Begin with the end in mind and don’t let yourself get side tracked.

Another important thing to do in order to be a good self-advocate is getting to know your community.  What kind of resources are there that can help you?  You may gain knowledge and support from connecting with resources like: local support groups, advocacy agencies, faith communities, community associations, and private providers.

Each county has resources that can connect you to the special needs community.  PAVE has great programs and resources to help individuals build and strengthen self-advocacy skills such as Community Inclusion for Everyone (CIE) and Parent Training and Information (PTI).  You can go to PAVE’s website at  to learn about additional programs.  Also, you can connect with your local DDA coordinator to get a listing of other local agencies and support groups/programs in your area such as Parent to Parent, People First, and others.  Attending local meetings is a way of connecting with like-minded people who have some of the same passions you do and can help you gain a deeper understanding of local relevant issues.

Becoming a strong self-advocate is key in achieving successful independence and healthy living as an adult in your community.  Always remember there are many people who are ready and willing to help you, so don’t be afraid to reach out and ask for assistance along the way!