New Funding for Children and Youth Behavioral Health Respite

A Brief Overview

  • Respite care (short breaks) is important for all parents and other family caregivers. Being overwhelmed by caregiving tasks with no breaks is not good for the family caregiver and the person getting care.
  • WA State has been approved for additional Medicaid funding to provide respite for family caregivers of youth with high (complex) behavioral/mental health needs
  • This short article is advance notice about this new funding and who may be eligible.
  • There will be an important public hearing at 10 AM July 21, 2026 about this new respite program, to help the state decide how it will work. Family caregivers’ feedback at this hearing will help decide how the new respite program will work.

Article

In 2026, respite care for family caregivers of children and youth with behavioral health needs was approved by the Centers for Medicare and Medicaid Services through a 1115 (Medicaid Demonstration) Waiver. Caregiver respite will be a service through WA State’s Department of Heath’s (DOH) Health-Related Social Needs. DOH is still planning how this will work, but overworked family caregivers are advised to be aware of the situation and start the process for receiving respite.

Part of the planning is the rulemaking process. Rulemaking means creating rules or guidelines for a new program. A public hearing on this matter is scheduled for July 21 at 10am, and is open to all. It’s important for family caregivers to share their opinions during the hearing so that rules and guidelines include their point of view and needs. The rulemaking process for caregiver respite is currently being led by the Department of Social and Health Services (DSHS).

The current goal date for caregiver respite to go into effect is January 2027.

The first groups to be served are children and youth up to age 20 with complex behavioral health needs requiring supervision by an unpaid (usually family) caregiver. Examples of programs serving this population include but are not limited to: Wraparound with Intensive Services (WISe), Mobile Response and Stabilization Services (MRSS), and outpatient community behavioral health programs. If your child or youth are served by these or very similar programs, you, as the family caregiver, may qualify for the new respite services.

To receive these respite services, families with children or youth with behavioral health issues need to be screened and approved by the Health Related Social Needs (HRSN) services.  This can be done by a direct referral by a healthcare provider or social worker, a Community Care hub, or by a care coordinator from an MCO (Managed Care Organization). To find a local Community Care Hub, use this sheet from the Washington Health Care Authority (HCA). Community Care Hubs provide many services in addition to respite referrals, so any family on, or that is eligible for, Medicaid or Apple Heath who is struggling with housing, food, and other necessities, are advised to look into those options.

Camps for Individuals with Disabilities

It’s that time of year! Registration for summer camps usually open January through March. Camp dates tend to fill up fast, so we offer a list of many camps across WA State that serve individuals with disabilities, from pre-K to adult.

Did you know…camps aren’t just for summer! Many of these camps operate during the school year for weekends, after-school, and school vacation dates.  Along with the camps listed below, local YMCA and Boys & Girls Clubs have options that fit into families’ schedules year-round.

Some of the camps listed below were created specifically to serve campers with disabilities or certain medical conditions. Others serve campers with and without disabilities. Both types of camps are likely to ask families for information about their child or other family member to make sure camp staff can support them.

Click on the “plus signs” (+) below to open the list of camps in that category. Many of these camps are in overlapping categories—you won’t miss any! Happy camp hunting!

Ages 1 – 5

  • Camp Dart-Lo in Spokane – Day camps for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Evolutions Preschool Summer Camps in Camas – Day camps for ages 3-6 years.
  • My Gym in Happy Valley, Oregon – Summer camps for children ages 3-10 years.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities in Seattle, WA.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16, in Vancouver, WA.

Ages 5-18

  • Apex Summer Camps offered by the University of WA Autism Center, Seattle. Children age 6-13, scholarships available.
  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who have experienced a significant loss in their life.
  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Blue Spruce in Shelton – One week camp for children with food allergies, who are going into 4th through 12th grades.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Dudley near the White Pass Ski Area on Rt 12– Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by the Eluna Network.
  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Camp Sealth on Vashon Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Mindsource Center Friendship Builders in Covington – Day camp for children who are neurodivergent, with a focus on ABA and social learning, aged 5-11.
  • My Gym in Happy Valley, Oregon – Summer camps for children ages 3-10 years.
  • Ocean Park Camp – Overnight camp for grade school children and families. (religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • The Benji Project in Port Townsend – Focuses on mindfulness, art, and community during their weeklong day camps.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

For Young Adults and Adults

  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.

Family Camps

  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families. (please note: this camp is religiously affiliated)
  • Camp Korey in Mount Vernon – Free overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious illness/terminally ill or children with a developmental disability
  • Camp Sealth on Vashon Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Ocean Park Camp – Overnight camp for grade-school children and families. (please note: this camp is religiously affiliated)
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (please note: this camp is religiously affiliated)

For Intellectual and Developmental Disabilities

  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Apex Summer Camps in Seattle offered by the University of WA Autism Center. Children age 6-13, scholarships available.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Dudley near the White Pass Ski Area – Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Evolutions Preschool Summer Camps in Camas – Day camps for ages 3-6 years.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Mindsource Center Friendship Builders in Covington – Day camp for children who are neurodivergent, with a focus on ABA and social learning, aged 5-11.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • My Gym in Happy Valley, Oregon – Summer camps for children ages 3-10 years.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (please note: this camp is religiously affiliated)
  • Ocean Park Camp – Overnight camp for grade-school children and families. (please note: this camp is religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

For Physical Disabilities or Conditions

  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families.
  • Camp Blue Spruce in Shelton – One week camp for children with food allergies, who are going into 4th through 12th grades.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Korey in Mount Vernon – Provides overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions for free.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious/terminally ill or developmentally disabled child(ren).
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.

For Behavioral Health Diagnosis

  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who’ve experienced a significant loss in their life.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by eluna.
  • Camp Mariposa in Everett and Vancouver – Free day and overnight camp for youth affected by the substance use of a family member, run by eluna.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Mindsource Center Friendship Builders in Covington – Day camp for children who are neurodivergent, with a focus on ABA and social learning, aged 5-11.
  • The Benji Project in Port Townsend – Focuses on mindfulness, art, and community during their weeklong day camps.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.

Seattle/Tacoma Area

  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Apex Summer Camps offered by the University of WA Autism Center. Children age 6-13, scholarships available.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by eluna.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Mariposa in Everett and Vancouver – Free day and overnight camp for youth affected by the substance use of a family member, run by eluna.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Mindsource Center Friendship Builders in Covington – Day camp for children who are neurodivergent, with a focus on ABA and social learning, aged 5-11.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (please note: this camp is religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

Northern Puget Sound

  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Korey in Mount Vernon – Provides overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions for free.
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.

Coastal Washington

  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Blue Spruce in Shelton – One week camp for children with food allergies, who are going into 4th through 12th grades.
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Ocean Park Camp – Overnight camp for grade-school children and families. (please note: this camp is religiously affiliated)
  • The Benji Project in Port Townsend – Focuses on mindfulness, art, and community during their weeklong day camps.

Eastern Washington

  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who’ve experienced a significant loss in their life.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Camp Dudley near the White Pass Ski Area – Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious/terminally ill or developmentally disabled child(ren).
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Evolutions Preschool Summer Camps in Camas – Day camps for ages 3-6 years.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • My Gym in Happy Valley, Oregon –  Summer camps for children ages 3-10 years.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 

Keeping Kids Busy Through Summer: Summer Camp Alternatives

Summer camp is an excellent way for children to spend the long summer days. However, camps often fill quickly, and many are too expensive for families. Here are some alternatives to summer camps to entertain children and give caregivers some much needed respite.

A Brief Overview

  • There are many inexpensive ways to entertain children over the summer 
  • Check with local parks and recreation for activities, including those for children and youth with disabilities 
  • Washington State Parks are wonderful for families to explore 
  • Check with family organizations, schools, and teachers for ideas and information on programs 

Full Article

Local parks and recreation departments often increase children’s activity programs for the summer. These can include sports, preschool classes, and outdoor activities. Some of the parks and rec departments, especially in larger communities, have adaptive or accessible classes, for those with disabilities and/or sensory issues. Cities and towns who have parks and recreation departments usually have information on the city or town website, or you can call the city or town main office. Some counties have similar programs, both summer and year-round. Check out the county website (usually the name of the county plus “.gov”). 

Several national non-profits have low-cost options for families during the summer, and year-round. Boys and Girls Clubs have activities, classes, and day camps, and membership fees are on a sliding scale. Their Find a Club interactive map will let you locate the nearest club. The YMCA may offer day camp options, along with their usual sports and recreation options. They have scholarships to help pay for enrollment and camps. 4H, the nation’s largest youth development organization, has many opportunities for children and youth to engage in hands-on learning, skill building, and community interaction. Various branches of 4H offer Science, Technology, Engineering & Math (STEM) activities, civic engagement, animal science, environmental science, performance arts, nutrition and health, and many, many more activities are available through your local camps. 

Washington State Parks provide for a wide range of outdoor activities this summer and even have special events that can be viewed on their calendar. For children four and up, the Junior Ranger Program has activities to print out, along with ideas for indoor and outdoor fun. For those with physical limitations, an interactive ADA map of park facilities shows the wheelchair accessible options throughout the State Park system. 

Libraries often have surprisingly varied options, including reading programs, arts and crafts, educational classes, and movie nights. Many libraries now have take-home kits for creative activities to do with the whole family. Summer reading lists are available both on library websites and in-person. A full listing of libraries in the state is available from library technology. 

Movie theaters sometimes offer sensory-friendly film viewing at certain scheduled times, check with the theater. Good for those hot afternoons! Information about these screenings can be found on the websites of the theatres, including major chains such as AMC and Regal. 

Parent groups and family organizations are often up to date on the latest summer activity offerings around the community. The Arc of Washington and Parent to Parent are both focused on families with children with disabilities or special health care needs, are aware of many opportunities, and may even offer some events for families and kids.  

Some school districts have enrichment activities over the summer beyond the extended school year (summer school) options. Local school district websites will have full listings for anything they may offer. Often schools and school districts also have recommendations for summer activities and information on summer events. Teachers are a useful resource for summer ideas and information, as they have heard a lot about what their students are doing this summer, so a quick chat with them may be in order. 

Several websites focus on community events and classes that children and youth can be involved in over the summer. The most prominent is Macaroni KID, but others include Parent Map, and Family Day Out. The local Chamber of Commerce and local newspapers will also post some event highlights and may list on their community calendars. Summer is also the time for County Fairs and other events, many of which take place in August. 

There are children’s museums, large and small, around the state. They have increased offerings during summer months; some even have camps. Most are geared towards younger children through elementary school age. The most prominent museums include the Seattle Children’s Museum, the Hands On Children’s Museum of Olympia, the Imagine Children’s Museum in Everett, the Children’s Museum at JBLM, Children’s Museum of Tacoma, KidsQuest Children’s Museum in Bellevue, KiDiMu on Bainbridge Island, Children’s Museum of Skagit County, Tree Fort Children’s Museum in Moses Lake, and the Children’s Museum of Walla Walla. 

Lifespan Respite WA (a program of PAVE) has a list of registered providers that is accessible to everyone, where it is possible to find recreation and respite options by county, age served, disabilities served, and respite type. The options listed under Recreation on the “Respite Type” menu has an array of interesting options that may have flown under a family’s radar, such as equine therapy, music classes, and sensory-friendly playgrounds. Check out their page “Creative Options for a Respite Break” for more low-cost and free ideas for summer (and year-round) activities. Visit their How to Apply for Respite page to find out if you qualify for a small grant for short respite breaks! 

Asking for Help is a Selfless Act for Family Caregivers

Many family caregivers find it difficult to ask for help in taking care of their loved ones. Whether it’s because they don’t want to burden others, not wanting to admit they need help, or feel that it’s “something that family does”, caregivers often don’t ask for help, or they reject help when it is offered. Despite the best intentions behind this, it’s not good for the caregiver or the person they care for. Overburdened and overwhelmed caregivers are not as effective at caregiving. Their loved one, who can tell that their caregiver is exhausted, may feel frustrated and guilty. Getting assistance from outside sources is helpful for everyone. Use these ideas to begin!

Start small: Ease into taking caregiving breaks (respite breaks). If a friend or family member offers to stay with your loved one, make the first respite break short. Have them take over care while you take a shower, run an errand, or take a walk. These short breaks will allow your friend or family member to get a feel for caregiving and allow you and the person you care for to adjust. This easing into respite can be especially important if the person you care for is an individual with intellectual or developmental disabilities or a person with dementia who has trouble adjusting to change.

Think about the interests and strengths of your friends and family. Everyone has strengths and weaknesses, things they enjoy and things they dislike. Keep these in mind when using a family member or friend to help with caregiving. Allow your cousin who loves to cook to make a meal and your neighbor who loves to drive around town take your loved one to appointments. If a potential caregiver and your loved one have something in common that they enjoy, all the better.

Be prepared: Before anyone starts helping, put together a full sheet of information on the person you care for. This should include medications, schedule, likes and dislikes, and emergency contact information. Include what you want the caregiver to do, like help with bathing, cooking, or exercises.

Timing is everything: Ask for help in respite care during a time that is convenient for the potential respite caregiver. This means contacting them at a time when you know they will not be busy and asking their help at times when they are not working or are busy with other responsibilities. If you don’t know their specific schedule, ask when they might be free to help.

Be honest: When you ask for caregiving help, honesty is the best policy. Explain to the potential caregiver why you need a break, and why you think they would be a great person to help fill that gap. Also be up front about your concerns, as they will help the potential caregiver decide if they feel comfortable helping.

Accept the word “no”: Not everyone is comfortable being a caregiver, even if they have been one in the past. People’s lives are busy, they have plenty of other stress, and sometimes they have private issues that would keep them from being a respite caregiver. This doesn’t mean that they care about you or your loved one any less; it just means that they are not mentally or physically able to help in this manner. You can always ask for other forms of help, like having them run errands for you when you are too busy or bringing a meal occasionally. Allowing someone to say no to caregiving but still help when needed is valuable to everyone involved.

Plan ahead: You never know when you will need emergency respite, so having a couple of people on standby who have some experience in caregiving for your loved one is essential. Read more about planning for emergency respite in our article “Do You Have an Emergency Respite Plan?”

Share the care: Just as no single person should have to be completely responsible for another person’s care, so there should be more than one respite caregiver. Think critically about your own friends and family who would be willing to help, along with the friends and family of the person who needs care, some of whom you may not know as well. They may wish to help, but don’t know how to ask. Having several people help from time to time means none of them get burnt out, and your loved one gets to see an array of friendly faces.

What about reaching beyond family and immediate friends to the groups in which you have been active, such as your exercise class members, your faith community, your parent group, etc. You might say something like “I haven’t been to book group in a while because I’ve been caring for my father, and I’m badly in need of a break. Do you think you might be able to come over and read to Dad for an hour next week?”

Think about professional respite care: There are a variety of ways to afford professional services for the person receiving care. Explore these resources from PAVE:

Do You Have an Emergency Respite Plan?

Who will care for your family member if you are temporarily incapacitated? Don’t wait for an emergency situation to occur to think about who will take care of your loved ones.  Finding someone to take care of your children, grandchildren, or elderly relatives on short notice takes time and information, so plan ahead.

In this article:

  • 4-step process to set up a backup plan for “emergency respite” when you will need other people to provide care to your loved one when you suddenly can’t
  • Examples of forms and documents you can use to make plan set-up easier
  • Where you may find paid respite providers
  • Where you may connect with potential unpaid respite providers in similar circumstances
  • Potential financial resources to pay for emergency respite care

4 Steps to create an emergency respite plan and put it into action

Step 1) Get it down on paper:

  • List the people you care for; with the hours you care for them and what care you provide (for example, monitoring medication, bathing, shopping, etc.). Note where the care is provided (they live with you, they live in their own home, etc.)
  • List the people you know that are capable and willing to care for the individuals for whom you care. If the list is short, create a list of those who you think may be able to provide care.
  • Recognize that if you have several people for whom you care that you may not be able to use the same caregiver for all of them. Also recognize that if you ask someone to be an emergency caregiver, that that person might expect that the agreement is reciprocal – they may expect that the people that they care for will be taken care of by you, should it be needed.
  • Be aware that if you hope to use a facility, such as a nursing home, it will be extremely difficult to find space in a facility at short notice. Such organizations can’t guarantee if or when a bed will be available even with advance notice.

Forms and resources to help you make these lists:

  • You can certainly just use your own outline of your loved one’s care needs and routines, and medical information, but below are several free documents designed for children’s care.
  • For others, there are numerous printables or notebooks available via an internet search, including many found on Etsy and Amazon and even local drugstores!
  • Try a search for “hardcopy medical information form”, “hardcopy medical information planner”, “caregiver daily record”, “senior care checklist”.
  • Portable Medical Summary is for vital information to carry around with you at all times.
  • Getting to Know Me is a short form that children can carry with them that is also available in Spanish.
  • What’s the Plan? Includes In Case of Emergency, and Getting to Know Me

Step 2) Have an open and honest discussion with the people on your list:

  • Are they willing to provide emergency respite if needed? 
  • Are there time limitations on what they can provide?
  • Are there questions they need answered before they commit? 
  • Who will be the primary caregiver, who will be the backup caregivers, and who will be the main contact person and coordinator?
  • You can reassure potential temporary caregivers that you’ll have complete information about the person’s care needs, medications and how to give them, medical contacts, and how you can be contacted while you are not able to do caregiving
  • If there are few or no people who you can depend on for emergency respite, start researching to find if there are paid caregivers you can use, or possible unpaid caregivers with whom you don’t yet have a strong relationship. Note that paid caregivers will need some lead time to schedule services, so they are not for a last-minute call.
  • It’s a good idea to have at least some strong possibilities for emergency respite care before you follow Step 3, discussing the plan with the person you care for

Step 3) Have a discussion with the person you care for about the emergency respite plan and the emergency caregivers

  • It’s crucial that their opinions are part of your plan process, and they are comfortable with the plan so that any switch in caregiving goes as smoothly as possible.
  • If you care for people who take time or repetition to process and accept change, it’s important to begin the process of why, when, who, and what so the transition to a new person or people is easier.
  • When possible, the people you care for may add their request to a potential emergency caregiver to yours. They may also suggest potential caregivers you haven’t thought of!
  • Realize that you may have to revisit Step 3 as you try to firm up your plan, or when the plan needs changes.

Step 4) Get the complete plan on paper and share it with your emergency caregivers and the people they will care for.

  • Take the document you began in Step 1 with information about your loved one’s needs, healthcare, likes and dislikes, and routines.
  • Add contact information for your emergency caregivers, with brief information on who will be the primary caregiver, who will be the backup caregivers, and who will be the main contact person and coordinator.
  • Carry a copy of this information with you and give it to your emergency contact, along with the people who you are likely to tap as emergency respite caregivers.
  • Important: Post a copy of the plan in your home, in a prominent place where first responders will find it (refrigerator in kitchen, next to a landline phone are both good places).
  • If you care for people who live in their own homes, ask them if you can post it there as well, with their permission. Explain that it’s important for everyone to know who will be taking over if you need to pause in your caregiving.

Medical and other social workers and those intimately acquainted with the needs of your family can be helpful in the process if you get stuck.

Possible unpaid caregivers: Reach out for connections and relationships that may help you in an emergency.

  • Often parents who have children with similar diagnoses can come to an understanding where they will take care of each other’s children in an emergency situation. One good place to find these connections is through the Parent to Parent (P2P) programs across WA State. Find contact listings in the P2P program pages at The Arc Washington State.
  • If you care for a child or young adult with complex medical needs or a specific condition, you can find support groups and contact information on the website of Washington’s Family to Family Health Information Center.  You can also use the Get Help link on that site, or at PAVE, to ask about support or “affinity groups” (affinity groups are for family caregivers/parents whose loved ones have similar conditions or other things in common).
  • If the person you care for has a specific medical condition, such as dementia, Parkinson’s Disease, or Traumatic Brain Injury, try an internet search for local chapters of organizations which support people with those conditions.
  • Do you have a faith community (mosque, church, synagogue, temple, etc.) that might be able to put together some volunteer care?
  • Are you caring for the child or children of another family member or friend? Whether or not you have official guardianship, you can reach out to the Kinship Navigators in your county or area of Washington State. These professionals can offer support and referrals to caregiving organizations and individual providers, and potential ways to afford care.

Regional and County-level programs may help to locate paid caregivers and possible financial assistance to pay them:

  • For any county: type the name of the county and then .gov (example: Snohomish County.gov) to get your county’s official website.

General information on where to get respite (planned breaks from caregiving) across WA State: Respite Offers a Break for Caregivers and Those They Support -information on different sources of respite care in WA State, many of which cover some or all of the cost of care.

To find paid caregivers, you can:

  • search for qualified paid caregivers through the Lifespan Respite provider database
  • If you are in King County, try Carina.org to search for an agency or individual provider
  • your local Area Agency on Ageing serves caregivers of seniors and people of ANY age with disabilities). Search by your county to find contact information for local services.

State agencies to help you find paid caregivers and funding for paid care: With hundreds of different caregiving companies and nonprofits around the state, it is not possible to list them all. There are several agencies that have full listings of caregiving providers. Statewide, you can contact Community Living Connections at 855-567-0252, and Eldercare Locator at 800-677-1116

Creative Options for a Respite Break

The person you care for may have specific assets and strengths that provide an opportunity for you to have a respite break. These include being able to stay home alone safely, to call 911 when needed, not being prone to wandering away from home, and being able to use basic technology like a smart phone. If out in the community other skills include being able to communicate their home address, to use public transportation, and to reach out to a contact person if needed.

Peer-to-Peer Respite for Older Adults – If your loved one has friends he or she once or currently participated in activities with—activities like fishing, playing cards, quilting, etc.—consider setting up ‘dates.’ In the right situations, it is a win-win for all. It provides a break for the caregiver, their loved one gets to engage in ‘normal’ activities, and his or her peers have opportunities to spend time with friends.

Adult Day Centers: The National Adult Day Services Association can help you find local adult day services at nadsa.org/locator and you can find more information for caregivers at nadsa.org/consumers

Learning Experiences: State and community colleges often have opportunities for youth, adults and seniors to take classes on a non-credit basis. Some offer programs that are geared to seniors or individuals with intellectual or developmental disabilities. In WA, residents age 60 and older may be able to waive tuition costs and pay only a small registration fee. Check your local community college or state college or university campus location.

Equine and other animal therapy: Numerous sites around WA state! Some programs involve supervised riding, others involve caring for and walking with the animals. Google “Equine therapy WA State”, “Riding programs WA State”, and “Animal Therapy programs WA State”. Many are specifically designed as respite opportunities.

Sports and Exercise: YMCAs, YWCAs, your town or city’s Parks and Recreation department.

Music Therapy; Inclusive Theater

Day and Overnight Camps (adults as well as children) PAVE publishes a long list of camps supporting individuals with disabilities in Washington State.

After-school Programs through your school department or organizations such as Boys & Girls Club, town or city recreation or sports programs.

Girl Scouts of the USA provides inclusive scouting activities for girls with special needs.

Boy Scouts of America involves boy scouts with physical, developmental or cognitive challenges in local troop activities .

Social activities through your local faith community, with a supportive volunteer.

Find a Family Day Out or a Parents Night Out. A variety of organizations from churches to schools to other civic organizations offer these. Google ‘Family Day Out’ or ‘Parents Night Out’ with the word ‘respite’ to find resources in your area.

Memory Cafes provide a safe and comfortable space where caregivers and their loved ones can socialize, listen to music, play games, and enjoy other appropriate activities. For a directory of Memory Cafes go to The Memory Cafe Directory

Senior Centers in your town or city

The Senior Companion Program through Senior Corps, a branch of the federal Corporation for National & Community Service, matches volunteers older than 55 with seniors living independently to provide companionship, help with daily tasks and a break for family caregivers. Click on this Senior Companionship Program

Time Banking is a time-based currency. Give an hour of service to another and receive a time credit. You might provide an hour of bookkeeping, for example, and receive an hour of respite. Time banking takes place as members give and receive services to each other, or through group and community activities and projects. Members include individuals, groups, and organizations.  Visit the Timebanks website for more information.

Explore the list of Lifespan Respite WA registered providers for out-of-home respite options in your area. Programs and services for adults and children. (You do not need to have a respite voucher award from Lifespan to use these programs, although they do charge fees).

Kinship Families: Early Intervention, Special Education, and 504 Plans

Kinship families are created when a relative or close family friend raises a child or children when parents can’t. The relative or friend is often referred to as a “kinship caregiver”. This article will be helpful for new kinship caregivers and long-term kinship caregivers if their child or children has or develops a disability. This article focuses on early intervention and special education for children with disabilities in Washington State. It describes early intervention and special education and how to get those services or alternative services.  

It has information about situations like: 

  • The child got special education or had a 504 plan at their previous school 
  • The child received early intervention services with their birth or previous family 
  • A kinship caregiver thinks a child does not have the usual skills for their age, or they are not doing well in school, and the caregiver thinks it may be due to a disability 

This article also has information about the school enrollment process and documents needed and the right to go to school in Washington which applies to all children whether or not they have a disability. 

For schools, who can act as a parent?

Many different people may be defined as parents under the Individuals with Disabilities Education Act (IDEA), a U.S. federal law which makes sure eligible children with disabilities receive a free, appropriate public education (FAPE). It covers children from birth through age 21.   

The definition of a parent states: 

“(1) A biological or adoptive parent of a child; 
(2) A foster parent, unless State law, regulations, or contractual obligations with a State or local entity prohibit a foster parent from acting as a parent; 
(3) A guardian generally authorized to act as the child’s parent, or authorized to make educational decisions for the child (but not the State if the child is a ward of the State); 
(4) An individual acting in the place of a biological or adoptive parent (including a grandparent, stepparent, or other relative) with whom the child lives, or an individual who is legally responsible for the child’s welfare; or 
(5) A surrogate parent who has been appointed in accordance with § 300.519 or section 639(a)(5) of the Act”.   

Kinship caregivers may fall under one or more of these categories. It’s important for kinship caregivers to understand what their rights and responsibilities are about their child’s education. If kinship care does not involve legal steps to remove a parent’s rights, the birth/biological parents still have the right to make decisions about their child’s education, such as:

  • Where the child goes to school 
  • Whether the child can get special education services and supports or a 504 plan 
  • What goals, services, etc. are written on the IEP 
  • Notifications about and the right to attend IEP meetings (remotely, if necessary). 

In WA State, the school will, based on the law above, assume you have the right to make educational decisions about the child, but the child’s parents can still intervene if they wish. 

There is information available about kinship care situations where the kinship caregiver has rights to make educational (any many other) decisions for the child. Those situations (statuses) may include guardianship of a minor child, adoption, or getting a Power of Attorney from the birth parents to make certain decisions about the child’s education and other areas. WA State’s Kinship Navigators can connect you with legal aid resources. One online source is Washington Law Help, a “public law library” for legal information in WA State. It’s maintained by the nonprofit Northwest Justice Project and explains legal terms and legal situations with easy-to-understand wording in English, Spanish, and 8 other languages commonly used in Washington.

School Enrollment

Documents you may need: 

  • Something that verifies your address, like a utility bill 
  • Something that confirms the child’s age, like a birth certificate or a certified doctor’s statement 
  • A record of the child’s immunizations 

The WA State Governor’s Office of the Education Ombuds is the state’s problem-solving office for educational issues or questions. On their website they write: 

“Schools often list examples of the kinds of documents you can use for enrollment. If you do not have the specific documents that the school generally requires (like a copy of bills, or a birth certificate for your child), talk to the school enrollment office about your situation.

Alternatives to Birth Certificates/Passports: Schools must accept alternatives to show a child’s age or date of birth. The school cannot insist on receiving a birth certificate or passport if you do not have one. Other alternatives might include an adoption record, a certified statement of a physician, or an immunization record with a birthdate on it. 

Proof of Residency: Schools generally ask for proof of where you are living in order to be sure your child is a resident of the district. However, if you are currently without a regular place to live (if you are experiencing homelessness), the school cannot require documents before enrolling your child. If this might apply to you or a child you are caring for, ask at the school or district office to talk with the school district’s “McKinney Vento Liaison.” 

Remember, all children who live in Washington State have the right to access public education. If you are trying to enroll your child in school, but you do not have the paperwork the school usually requires, please ask for help. 

You can ask for help at the school or at the school district office. You can also contact our office at 1-866-297-2597 or visit our Get Help page to contact us through our online intake system.”  

Kinship caregivers can enroll their child at the office of the local school. When a child is enrolled in a school district, they are usually placed in the school closest to where they live. 

  • How to find your local school district: School Districts, Charter Schools, Tribal Schools and Education Support Districts (ESDs). Includes links to each district or school’s website.
  • How to request information from a previous school: Contact the school office at the child’s last school. If you don’t know the school’s name, try an online search such as “high schools in (Town Name, State)”. Schools usually have their own websites and contact information.

What is Early Intervention?

Early Intervention is a system of services for infants and toddlers (birth to age 3) that have developmental delays, risk of developmental delays, or diagnosed conditions. Services and supports may include speech, physical or occupational therapy, hearing assistance, nursing care, and vision care. The services are provided in the home or in the community.
Every state is required to offer these services under Part C of the Individuals with Disabilities Education Act (IDEA Part C). Services are either free, low-cost, or billable to some insurances.

Families are assigned a Family Resource Coordinator (FRC) and an Individualized Family Service Plan (IFSP) is created by the FRC and the parents (kinship caregiver) for services to support the child’s development and activities for the family to do with the child at home.

When a child reaches age three, the child can transition to special education if needed with a new evaluation. Kinship caregivers may want to start with PAVE: Early Intervention: How to Access Services for Children Birth to 3 in Washington

What is Special Education?

“Special education is instruction that is specially designed to meet the unique needs of a child with a disability. This means education that is individually developed to address a specific child’s needs that result from his or her disability. Since each child is unique, it is difficult to give an overall example of special education. It is individualized for each child.

Some students may be working at the pre-kindergarten grade level, others at the first, second, or third grade level. There may be students whose special education focuses primarily on speech and language development, cognitive development, or needs related to a physical or learning disability”. 

-Center for Parent Information and Resources

A child getting special education has an Individualized Education Program (IEP) created for them by an IEP team that includes

  • Parents or Guardians (including kinship caregivers)
  • Student (when appropriate)
  • Special Education Teacher
  • General Education Teacher
  • School Representative, Administrator
  • Specialist or service providers
  • Additional Individuals (a parent advocate or friend)

PAVE, Who’s Who on the IEP Team?

What is a 504 Plan?

“A student with a disability is protected by multiple federal laws. One of these laws is the Rehabilitation Act of 1973. This law is enforced by the U.S. Department of Education’s Office for Civil Rights. Section 504 is part of the Rehabilitation Act and it helps protect students from being treated unfairly because of their disability.”

“The right to a Free Appropriate Public Education (FAPE) is protected by Section 504 and the Individuals with Disabilities Education Act (IDEA). The most common way schools protect Section 504 FAPE rights is through accommodations. A student might have specifically designed help to accomplish their schoolwork, manage their emotions, use school equipment, or something else. The sky is the limit, and Section 504 is intentionally broad to capture a huge range of possible disability conditions that require vastly different types and levels of support.”

PAVE, Section 504: A Plan for Equity, Access and Accommodations

A document, called a Section 504 Plan or just 504 plan, is developed by a team at the child’s school, and includes the child’s parents (kinship caregiver), the 504 coordinator, teachers, and other appropriate staff. The plan is shared with the child’s teacher and any other appropriate staff and is reviewed and updated by the team regularly and as needed.

What to do if the newly arrived child or children had special education, had a 504 plan or received Early Intervention, and they are now in a new school district, town, or state:

Early Intervention:

If the child used to live in a different state, contact Washington’s Early Support for Infants and Toddlers (ESIT) Program. It’s managed by the Department of Children, Youth and Families (DCYF). A new Family Resource Coordinator will be assigned.

You can tell them where the child used to live. If you do not have a copy of the Individualized Family Service Plan (IFSP) and if the FRC is unable to get it from the child’s previous state, the FRC may recommend a new evaluation.

If the child was already living in WA State, contact the ESIT program to let them know the child’s new address and family situation so an FRC can help you continue the child’s plan.

Special Education:

Students who get special education have an Individualized Education Program (IEP). IEPs are documents that outline instruction, services, goals and supports for students in grades Kindergarten through graduation. Parents, including kinship caregivers, are essential in helping a school create an IEP and review and update it every year or as needed.

IEPs and Free Appropriate Education (FAPE) in the Least Restrictive Environment (LRE) are required by federal law, the Individuals with Disability Education Act (IDEA).

  • When a child changes schools inside a school district, they keep the same IEP.
  • If a child moves to a new district from inside or outside Washington State, there’s a process to get comparable (similar) instruction and services.

The new school must provide comparable (similar) services immediately and hold an IEP team meeting within 30 days to decide whether to use the existing IEP or develop a new one. If the IEP team (including parents/kinship caregivers) decide a new IEP is needed, the school must keep providing comparable services until the new IEP is ready to use.

The school must get permission from the parents (kinship caregiver) to have a new evaluation done for a new IEP.

If the kinship caregiver doesn’t have a copy of the child’s IEP, they can contact the child’s previous school and ask for one copy to be sent to the new school, and one copy to the kinship caregiver. Knowing what’s in the child’s IEP, and keeping records is important to make sure the child is getting the services and supports they need.
Another way is for the new school to contact the previous school to get the IEP. In that case, ask the new school to make a copy and send it to you as early as possible before the first IEP team meeting.

To get help with problems with this process, contact PAVE through PAVE’s Support Form.

504 Plans: 

If a child is going to a new school in the same district, the new school will use the current 504 Plan.

If a child is moving from another school district or another state, the child still has a right under federal law for the accommodations, but the current plan isn’t transferred. This is because putting 504 Plans into action may be slightly different from state to state.

  • Parents (kinship caregivers) must provide documentation (the same type as required by the current 504 Plan) and advocate for current accommodations to continue (or be improved or added to).
  • Schools are required to provide comparable (similar) services and accommodations until a new plan is approved, but they will need the current 504 Plan to make that happen.

If the kinship caregiver has a copy of the 504 Plan, and the documents used to create it (such as medical records and diagnosis from a doctor), they can make copies and deliver them to the new school. Use email to send them if you have it to create a record of what was sent and the date.

If the kinship caregiver doesn’t have the 504 Plan document or the documents, use the same process as the IEP. Contact the office at the previous school and request they send the 504 Plan, along with all the child’s school records.

Schools are required to provide school records, but they may need a copy of a court order (if that is how a child was placed in a kinship family), or another type of document to prove they are acting as the child’s parent.

Kinship caregivers can contact these organizations if they are having problems with getting school records:

Finding out if a child needs Early Intervention, Special Education or a 504 plan

Age birth to 3

For children age 3 and up, the school district where the child attends (or will be attending) school is where kinship caregivers can request an evaluation (testing) to see if their child is eligible for Special Education, or possibly a 504 Plan.

A federal law requires all school districts to find, evaluate (test), and if eligible, serve any infant, toddler, or school-aged child who has a known or suspected disability that might impact (interfere with) their learning in school.

If you are not sure how special education would work for your child, you can fill out PAVE’s support form and you’ll hear back from a PAVE team member with first steps and resources to learn more.

Learn More

Kinship Caregiving

Relatives raising the child(ren) of a family member (Kinship Families)

Kinship families are families in which children live with and are being raised by grandparents, other extended family members, or other adults with whom they have a close family-like relationship such as close family friends. Many kinship caregivers don’t necessarily think of themselves that way–it’s natural to step in and raise children when the parents can’t. Even though most of the challenges that come with raising children are the same for a kinship family, there is an important difference. Kinship caregivers do not have automatic legal rights and responsibilities for the children. Raising children when they are not the child’s parent was not necessarily planned or expected. It’s often related to a family crisis, and the child welfare system is not always involved.

Kinship caregivers can often use help with all of the practical issues surrounding a suddenly larger family: large enough housing, paying for the extra food, ensuring medical care, and registering children at a different school. Legal issues may come up–powers of attorney to get things done, custody, guardianship of the children, parental rights and visitation.

There is help available! Kinship caregivers can get help with:

  • Health insurance and health care
  • Financial assistance (including food)
  • Other public benefits
  • Legal assistance
  • Tax credits
  • Schooling–especially if the child or children are now in a new school district
  • Support groups where other kinship caregivers share concerns, experiences, and ideas

WA State’s Department of Social and Health Services (DSHS) supports for Kinship Families, including Tribal Families.

More Help:

If the child or children have a disability or special health care need:

PAVE Family Voices of Washington Get Help (works for both programs)

If the child may be experiencing a developmental delay, or you have concerns about that:

“Developmental Screening (Birth to Three and Medically needed developmental screening)”

If the child’s special education needs are not being met: Get Help

If you need a break (respite): Lifespan Respite WA

For Care Partners/Caregivers of Individuals Living with Parkinson’s Disease

At Lifespan Respite WA, we focus on caregivers. Our team gathered resources specifically for caregivers from the organizations listed below, to support you in your life with your care partner.

Lifespan Respite WA for Professionals: Social Services and Medical

What Lifespan Respite WA does:

We offer interpretation if arranged in advance for almost any language. Email us in a preferred language to set this up.

Contact us:     Email: getrespite@wapave.org; Phone:  253-442-3214

Essential Information

  • Caregivers must not be receiving respite care funded through any other program or organization, whether government-funded or private sector. Family helping out by paying for respite care doesn’t count as “paid respite”. (On the other hand, families who are approved for publicly funded programs, but who won’t get services for at least 30 days or on a no-paid-services list are eligible for a Lifespan voucher).
  • We do not ask for any proof of condition or diagnosis, any proof of income, or any documentation. Everything is self-reported.
  • We are required to get a statement (emailed, texted) from a caregiver if the care recipient is on Medicaid, that no paid respite is being received from any program or agency. Financial help from family members is ok.
  • This program is for PLANNED, not crisis or emergency respite. No exceptions.
  • Short-term!! Must use within 4 months, unless for summer camps or recreation. In that case, proof of registration is required.
  • Extensions may be approved under compelling circumstances, on a case-by-case basis.
  • Usual award amount is $1,000.00 per household.
  • ONE voucher per household—if there are multiple care recipients, voucher is evenly split and can’t be transferred from one family member to another.
  • There is a wait list since there are always more applications than funds. We cannot tell exactly when an award will be made. According to our contract with the state, vouchers are given based on the date of application, but also on an equitable distribution of vouchers across WA State, taking into account the population density and numbers of applications from different regions.
  • Applicants get an email notice when we get their application. We will be sending interim notices to let applicants know their application is still on the list
  • Caregivers can reapply in one year from the date of their most recent application.
  • Caregivers have the responsibility to find out the hourly or session rate charged by the program or agency, and to keep track of hours or sessions so as not to run over the voucher amount. Caregivers are financially responsible for any charges over the amount of the voucher.

Important for family caregivers to know

  • The biggest barrier to voucher use, for many caregivers, appears to be contacting programs or agencies and persisting until they get a response back. This is why we recommend checking providers out even before a voucher is awarded. Check our “List of Providers” page to find out if the type of respite they have in mind is available in their area.
  • There is no guarantee that any program or agency has availability even when on our Providers list.
  • We have providers of some type in each county in WA; but some counties do not have much provider choice. We are constantly working on that!
  • Voucher applicants may suggest a provider if there is no availability among the registered providers, or if they have requirements registered providers cannot meet. The team will reach out and see if the suggested provider is willing to take the voucher funding.
  • We can’t pay a family member OR ANY OTHER INDIVIDUAL to be a caregiver. The only respite we will pay for is from one of our Registered providers.

Respite Offers a Break for Caregivers and Those They Support

Respite offers a short-term break for caregivers and those they support. This article provides information and resources to get started seeking respite services. Resources and links include sources of respite in WA State.

A Brief Overview

  • What family caregiving is
  • What respite care is, and why it’s important for family caregivers
  • Types of respite
  • How to decide on the best type of respite services for your family
  • Free and low-cost respite in WA State, including links to Veterans Administration and options for active duty military families.
  • Paying out-of-pocket for respite in WA State

What is family caregiving?

Modern families come in many styles. The primary caregivers of a person with a disability or special health care need might be parents or spouses or adult children, and they might be other relatives (kinship caregivers), friends, or neighbors.

They can also be described as “family caregivers”. This term is used widely by social service professionals, medical providers, and organizations and agencies that offer respite services and decide on respite care eligibility.

Some professionals use the term “care recipient” to describe the person who needs care from the family caregiver. However, in this article we will use the term “loved one” or “loved ones”, because family caregivers are usually not paid workers providing a service. They give care because families love and care for one another, and because “That’s what family is for”.

What is respite care? Why is it important for family caregivers?

Respite care is a short break from caregiving tasks for the family caregiver. It might last a few hours or include 24-hour a day care that lets the family caregiver (s) have a vacation.
Family caregiving can create deep bonds, be emotionally fulfilling and full of loving acts of kindness. It’s also physically, emotionally, and mentally tiring. Family caregivers don’t just run errands or do housecleaning for loved ones; they organize medical care, take loved ones to appointments, provide personal hygiene, handle finances, arrange after-school and childcare, wrestle with health insurance companies, Apple Health, or Medicare, and may have legal responsibilities such as being a court-appointed guardian or an agent under a Durable Power of Attorney.  

These responsibilities often add up to a full-time job in addition to paid employment and caring for other family members.  Respite breaks from caregiving are one of the top requests family caregivers make when they apply for caregiver supports and benefits, along with financial help. 

Family caregivers often wait until they are burnt out before looking for respite care. They may not realize it’s available for their situation, or their loved one may not like the idea of getting help from anyone but family. Putting everyone else’s needs before your own can take care of an immediate problem; in the long term, it can lead to increased anxiety, frustration, resentment, depression and even illness. Whether you think of yourself as a family caregiver or not, these are all signs of caregiver burnout and stress.

Time apart can boost well-being for both the family caregiver and their loved one. While caregivers temporarily shift their focus to necessary self-care, loved ones can meet new people and explore new interests.


What respite services would be most helpful?

Respite includes a wide variety of programs and services, such as:

  • In-Home Services (errands, light chores, personal care, companionship, medication reminders, etc.) *
  • Recreation (sports, exercise, crafts, and other leisure activities)
  • Day or Overnight Camps which serve individuals with disabilities
  • Day Services (dementia or memory centers, after-school and weekend programming for adults, children, and youth, daycares, etc.)
  • Education/Classes (may include preschools, nature schools, art, music, recreational skills, academics, etc.)
  • Organizations offering therapeutic benefits for a loved one (social skills groups, music therapy, equine/animal therapy, etc.)
  • 24-hour care

* In-home respite care does not include services that need to be performed by a nurse, occupational therapist or physical therapist. Some home-care agencies can provide services from those professionals, but most of the time, such services are arranged for and covered by health insurance.

Tools can help you decide which type or types of respite will work for you and your family:

Washington’s Pathways to Respite booklet includes “fill-in-the-blanks” tools to help define needs, like these examples:

“I would like to take a break, but I am concerned that___________” and “If I had some time to myself, I would _____________.”

This respite planning guide is from the Veterans Administration, but can work for any caregiver, civilian or military: https://www.caregiver.va.gov/CAREGIVER/support/docs/docs2024/Caregiver-Respite-Tool-2022.pdf#.

Ways to pay for respite and find respite providers:

If a family will pay out of pocket for respite services, they can find respite providers online. Here are some ideas to start a search:

  • “Adult Day Services Washington State”
  • “After-school programs children with special health care needs Washington State”
  • “In-home care agencies near me”
  • Check the listings at Lifespan Respite WA; listed agencies meet state standards for background checks and liability insurance.

Care.com is a paid private, online service connecting respite or personal care workers with potential care recipients and their families. Families are on their own to follow up on an individual worker’s qualifications, references, and background, although some listings will show someone has passed a background check. This service requires payment and a subscription, but it is easy to cancel once a caregiver has been hired. They also offer a program to manage tax withholding and payments for the independent workers hired.

If a care recipient is eligible for respite through private medical insurance, the insurance company will list approved providers or caregivers may call their insurance company representative.

When researching a respite agency, caregivers can check whether the agency meets standards and follows appropriate safety measures.

Here are a few examples of questions you might ask:

  • How are the workers chosen and trained?
  • Can the respite worker give medicine or help with medical tasks?
  • How are emergencies and problems handled?

A thorough guide is available at the ARCH National Respite Network and Resource Center: How to Choose a Respite Provider.

Free and low-cost respite services:

In Washington State, eligibility for free or low-cost respite services may depend on the caregiver or loved one’s circumstances or category of disability.

Seniors and Adults with Disabilities

Seniors 65 and older who meet functional and financial eligibility can get a variety of services through Department of Social and Health Services Home and Community Services Administration (HCSA).

Unpaid (family) caregivers of adults who are 55 and older who meet functional and financial eligibility can get respite care and other needed support services like caregiver education, support groups, housework and errands and other services.

The easiest way to learn about services and eligibility is to contact the county or regional Area Agency on Aging, which administers many of HCSA’s services. They are also listed at Washington’s Community Living Connections/waclc.org.

Some programs are:

Medicaid Alternative Care (MAC) and Tailored Supports for Older Adults (TSOA), Medicaid Demonstration Projects funded through Department of Health. Information and applications are handled through the Aging and Disability Resource Centers/Are Agencies on Aging (DSHS). These are WA’s most direct programs for unpaid family caregivers of people age 55 and older. They fund caregiver’s needs including respite care, caregiver training, and supplies. MAC serves people who are Medicaid-eligible but choose not to enroll in CFC. TSOA serves people who are not financially eligible for Medicaid, with higher income and asset limits, and does not require an unpaid caregiver.

As of September 2026, these programs have an automatic waitlist. Check back with the agency where you applied for updates.

Family Caregiver Support Program (FCSP)  An eligible caregiver is a spouse, relative, or friend who has responsibility for the care of an adult with a functional disability and does not receive financial compensation for the care provided. This program is administered by Aging and Disability Resource Centers/Area Agencies on Aging across the state. Respite funds vary by source, and availability of respite funding varies by location.

Catholic Community Services in WA are non-denominational in the services they offer. In addition to in-home supports, many other community/social service programs are available such as housing support, mental health support and treatment, food and financial assistance, teen and youth support, and more.

Catholic Community Services of Western WA

Catholic Charities of Central WA

Catholic Charities Eastern WA

Don’t forget to look in your community and nearby for memory cafes, volunteer-based dementia or disability day programs, and senior center offerings!

Respite for All Ages:

American Indian and Alaska Native Caregivers:

Lifespan Respite WA Voucher Programis open to all eligible American Indian and Alaskan Native caregivers.

Contacts for Tribal programs in WA State can be found on the HCLA Tribal Affairs website at Washington’s Department of Social and Health Services (DSHS). Individual Tribes direct their own caregiving and/or respite programs.

Community First Choice (CFC): your loved one is eligible if:

  • Financial Eligibility: must be financially eligible for Medicaid (Apple Health)
  • Functional Eligibility: require an “institutional level of care” (such as nursing home placement or an intermediate care facility) but choose to receive care at home or in an alternative living facility.
  • Medicaid Enrollment: Must be enrolled in Washington Apple Health (Medicaid) under a categorically needy (CN) or alternative benefit plan (ABP) scope of care.
  • If your loved one is age 65 or older, blind, disabled, or on Medicare, apply at WashingtonConnection.org.
  • If your loved one is under age 65 or not eligible for Medicare, apply using the WA HealthPlan Finder.
  • You can also apply in-person at a local Home and Community Services office.

COPES: a wraparound service for individuals on the Community First Choice plan. Individuals must have needs that exceed what is available in Community First Choice. Eligible individuals are in the Community First Choice Program. 

Home and Community-Based Services for individuals with developmental disabilities, which may include respite for their caregivers (through the Developmental Disabilities Administration/DDA)

Eligibility is based on the presence of one of four developmental disabilities (Intellectual disability, Cerebral palsy, Epilepsy, Autism) or associated disabilities, an age of onset prior to diagnostic criteria or age 18, and evidence of substantial limitations.

Important:

  • An individual must first apply to see if they are eligible (family member may apply for the individual).
  • Once eligible, the individual or family must apply for specific services.

Detailed information on the application process and on specific programs (“waivers”) can be found on the Informing Families website.

Lifespan Respite WA: offers a voucher (small grant) for unpaid family caregivers who support a family member, friend, or neighbor who needs assistance with daily living activities. The voucher is used to pay for services or programs that allow the caregiver to have respite, or short breaks from caregiving tasks. Lifespan Respite vouchers are for temporary short-term respite. 

Eligibility: the caregiver

  • Is not paid to care for their family member, friend, or neighbor;  
  • Provide 40 or more hours per week of care or support for someone with a special need or condition (the person can be any age), and the 40 or more hours must include supervision of the person receiving care;
  • Live in Washington State; 
  • Not be able to afford respite care on their own;
  • The caregiver or the person they care for are not enrolled in any program that provides respite services, unless they are on a wait list and not scheduled to receive services within 30 days of the voucher application.

Read more about Lifespan Respite WA and apply online.

Department of Children Youth and Families (DCYF):

Foster parents provide temporary homes for children whose parents are unable to care for them. DCYF and the family court system authorize placement of a child or youth in foster care when it is necessary for a child’s safety and well-being. More than half of children and youth using foster care in WA State are cared for by a kinship caregiver—a grandparent, other relative, unrelated close friend or “chosen family”. Federally recognized Tribes in WA decide who is a relative of a child who needs foster care.

Three types of respite are available through DCYF for Licensed Foster Parents, Unlicensed Relative Caregivers and “Other Suitable Persons”  (definitions at DCYF): Retention Respite (monthly breaks, emergent situations); Exchange Respite (arranged between licensed caregivers, approved by case workers and is not financially reimbursed); and Child-Specific Respite for relief from caregiving responsibilities linked to medical, behavioral or special needs of an individual child or youth.

Informal kin caregivers who do not have any contact with the foster care system may receive access to some benefits through the Kinship Program at WA’s Department of Social and Health Services. They may also be eligible if they or their kin child qualifies under any of the other programs listed under “All Ages”.

The WA Cares Fund is a public long-term care insurance program. All working Washingtonians contribute a small percentage of their income into the fund. Benefits can fund respite care and many in-home services. If a family caregiver retired prior to the program start in 2023, or if they left to care for their loved one, they may not be eligible for this program. If they did work from the start of the program but need respite services sooner than later, they may not have accumulated much in the fund. The maximum amount for benefits is $36,500, which will be adjusted for inflation.

Veterans and Military Family Caregivers

Active duty family members’ loved ones may be eligible for respite under Tricare Echo, a benefit under the military healthcare plans.

Exceptional Family Member Program: Provides all four military branches with care and respite support for families with a member who has a special need or disability. When military respite is not available, military families should know they are also eligible to apply for civilian respite services while living in Washington State.

Coast Guard Special Needs Program: provides Coast Guard family members who have special needs or a disability with care and support. Coast Guard families may also apply to civilian sources of respite care in Washington State.

Financial help paying for respite care may be available through Coast Guard Mutual Assistance. https://mycgma.org/

Veterans Affairs offers the Program of Comprehensive Assistance for Family Caregivers (PCAFC) which offers respite services.

Do you have questions about respite?

Please contact Get Support and select “respite (Lifespan)” as a reason for contacting PAVE, or call Lifespan Respite WA at 253-442-3214.

Relatives Raising Children Face Unique Challenges

Imagine a knock on the front door at night. Outside is a police officer, bringing a child to the safe-haven of a grandparent’s home. A grandparent might experience fear and confusion, trying to reconcile what has happened in the family and how to support the child. This is how a journey toward kinship care can begin.

May is Kinship Awareness Month, an opportunity to acknowledge relatives other than parents raising children. Nearly 50,000 family members in Washington are kinship caregivers. Many of the children in their care have experienced trauma and need special education or uniquely designed physical- or mental-health services.

Relatives who provide kinship care can qualify for state support. The Washington State Department of Social and Health Services (DSHS) provides a resource guide about kinship care that includes information about benefits and services, health care, legal issues and more. DSHS manages the kinship program as part of its Aging and Long-Term Support Administration (ALTSA).

Reasons that relatives other than parents raise children vary. Some family members are granted custody by courts involved in the child welfare system. In other circumstances, law enforcement places children with relatives after finding parents unfit. Parents may have died, or a relative may have intervened because of issues related to addiction or abuse. Some kinship caregivers are meeting a grandchild, niece, or nephew for the first time when that child needs a new home.

A child might arrive without any possessions. The financial cost and life disruption can significantly impact the relative providing kinship care. In Washington, the Kinship Navigator program can help. This program was adopted by the state in 2003.  

A Kinship Navigator can direct family caregivers to a variety of community resources related to healthcare, finances, legal services, support groups, training, child care and emergency funds. Kinship Navigators also can explain how to apply for federal and state benefits. The Kinship Navigator helps families establish or maintain greater self-sufficiency and long-term stability, often with a goal to keep children out of foster care.

A navigator can help family caregivers get involved with support groups and learn to balance the needs of the child with a potentially complicated relationship with the child’s parents. Daycare options can be located, and children might gain access to recreational and social activities to help them find belonging in a new life circumstance.

In spring 2019, Governor Jay Inslee signed into law Senate Bill 5641 to create a statewide kinship care legal aid coordinator. The state budget was expanded to include $500,000 for growth of the Kinship Care Support Program and $468,000 to fund Tribal Navigators for Native American families. One of the bill’s supporters was Rep. Eric Pettigrew, who in 2002 helped create a statewide Kinship Care Oversight Committee that led to development of the state’s kinship programming.

The Seattle Times published an article Dec. 28, 2018, about kinship care and reimbursement rates in comparison to foster care. According to the Times, about 43,000 relatives other than parents are raising children in Washington State. More than 90 percent of those caregivers are grandparents. The article includes data that most families choose not to become legal foster parents because of state scrutiny over the welfare system. Informal kinship-care arrangements are four times more common than formal foster care.

Generations United, a Washington, D.C.-based nonprofit, collects data about government costs and savings related to kinship care. The agency coordinates projects to strengthen intergenerational connections and offers ways for families to advocate for system improvements to benefit children, youth and older adults.

The Military Parent Technical Assistance Center, The Branch, provides specific guidance about benefits and other issues that impact short- and long-term kinship caregivers in military families.