Tag: Youth

Families and Youth Have a Voice on Mental Health Matters Through FYSPRT

Posted on by Nicol Walsh

A Brief Overview

  • FYSPRT (pronounced fiss-burt) is a hard acronym to learn, but it’s worth the effort for families and young people who want to talk about improving mental healthcare systems around the state.
  • Here’s what FYSPRT means: Family members, Youth and System Partners (professionals) get together at a “Round Table” (meaning everyone has an equal voice) to talk about issues related to emotional distress, mental illness and/or substance-use disorder. All participants share ideas about what helps and what could make things better.
  • The Washington State Health Care Authority (HCA) provides a map of the 10 FYSPRT regions and includes contact information for local leaders and a schedule of where/when meetings are held.
  • FYSPRT began after a class-action lawsuit against the state, TR v Dreyfus. The litigation resulted in development of the state’s out-patient mental-health services program for youth—Wraparound with Intensive Services (WISe).
  • FYSPRT is a place where families provide feedback about WISe, but all community members are welcome—regardless of age or agency affiliation.
  • Some regional FYSPRTs sponsor separate meetings and social events for youth.

Full Article

Parents and young people who struggle with emotional distress, mental illness and/or substance-use disorder can feel powerless to affect change in a complicated medical system. The Family, Youth and System Partner Round Table (FYSPRT) provides a meeting space for family members and professionals to talk about what’s working and what isn’t working in the state’s mental health systems. The groups also provide informal networking and can provide ways for families to meet up and support one another under challenging circumstances.

The state sponsors 10 FYSPRT groups to serve every county: A list of the groups and which counties they serve is included at the end of this article. Each group reports to a statewide FYSPRT, which provides information to state government to influence policy. The Washington State Health Care Authority (HCA) provides a map of the FYSPRT regions and includes contact information for local leaders and a schedule of where/when meetings are held.

FYSPRT began as part of a class-action lawsuit against the state, referred to as TR v Dreyfus. The litigation began in 2009, and settlements were mediated in 2012-13. The federal court found that Washington wasn’t providing adequate mental health services to youth and required that the state start delivering intensive community-based mental health treatment. The state responded by developing the Wraparound with Intensive Services (WISe) program for youth under 21 who are eligible for Medicaid. WISe teams provide a wide range of therapies and supports with a goal to keep the young person out of the hospital, which costs more and can be traumatizing.

Young people under 18 who need residential care are referred to the Children’s Long-Term Inpatient program: PAVE’s website provides an article about CLIP.

To provide accountability for the delivery of WISe services, the state created FYSPRT as a forum for families to provide feedback about how the program is working. The mission is to provide an equal platform for everyone within the community to strengthen resources and create new approaches to address behavioral needs of children and youth.

FYSPRT provides a space where youth impacted by behavioral health issues and their family members can share ideas about what works well and what would work better. The FYSPRT model is based on the belief that everyone’s unique perspective is equally important, and everyone is invited. FYSPRT meetings are open to all interested community members. Each community has unique participants depending on what agencies work in the cities and towns within the region.

In order to create an atmosphere of equality, the FYSPRTs are led by a combination of youth, family members, and systems partners.  While a healthcare organization often works as the convener, the leadership is split between the Tri-Leads, who are elected from their membership. These include Youth Tri-Leads, Family Tri-Leads, and System Partner Tri-Leads. For many parents and youth, FYSPRT becomes a place to bond and connect to support one another. Some regional FYSPRTs include separate meetings for youth, and those groups can become a key social outlet.

Staff who serve families through WISe are key participants. Other attendees are case managers from the state’s Medicaid-provider agencies, behavioral health counselors, foster-care workers, staff of homeless programs and staff and volunteers from affiliates of the National Alliance on Mental Illness (NAMI). Other participants are leaders of support groups for youth in recovery or working with issues related to gender identity or sexuality. PAVE staff are regular attendees in many regions.

Every area of the state of Washington has its own FYSPRT, overseen by the Health Care Authority.  Each of the ten FYSPRT regions is comprised of a single county or up to eight adjoining counties. In order to create greater participation from the general public, transportation and childcare stipends are available for families and youth in most areas. Some groups provide free meals for everyone and/or gift card incentives for the families and young people who attend. Family and Youth who act as leaders (Tri-Leads) along with system partners are paid for their participation.

Here are links to each regional FYSPRT’s website and a list of the counties each represents:

System of Care Partnership – Mason, Thurston

Great Rivers Regional FYSPRT – Cowlitz, Grays Harbor, Lewis, Pacific

HI-FYVE – Pierce

King County Community Collaborative (KC3) – King

North Central Washington FYSPRT – Chelan, Douglas, Grant, Okanogan

North Sound Youth and Family Coalition – Island, San Juan, Snohomish, Skagit, Whatcom

Northeast FYSPRT – Adams, Ferry, Lincoln, Pend Oreille, Spokane, Stevens

Salish FYSPRT – Clallam, Jefferson, Kitsap

Southeast FYSPRT – Asotin, Benton, Columbia, Franklin, Garfield, Kittitas, Whitman, Yakima

Southwest FYSPRT – Clark, Klickitat, Skamania

Online – Teen Advocates Collective

May 27 @ 4:00 pm – 5:00 pm PDT

Join teens who are 13 – 17 years of age with disabilities to connect online to share, chat, listen, brainstorm, and shape your future!

Check it out, join monthly, or when you can.

When Do We Meet?

Day: 4th Wednesday of each month (May is being held a day early)

Time: 4-5pm PT

Location: Zoom

What to expect….

Fun: Meetings will use technology, visuals, and games to keep things fun and engaging with simple language and various ways to communicate. You do not need to be tech savvy. We got you.

Guest Speakers: Self-advocates with real-life experience will share their stories and wisdom.

Topics: Bullying, friendships, safety, community advocacy, college, working, volunteering, housing, and more.

Engagement: It’s up to you! Each meeting will be facilitated to assure all have a chance to join in, ask questions, share their experience, or listen, stay quiet.

Free

PAVE P2P Staff

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Online – Teen Advocates Collective

May 27 @ 4:00 pm – 5:00 pm PDT

Join teens who are 13 – 17 years of age with disabilities to connect online to share, chat, listen, brainstorm, and shape your future!

Check it out, join monthly, or when you can.

When Do We Meet?

Day: 4th Wednesday of each month

Time: 4-5pm PT

Location: Zoom

What to expect….

Fun: Meetings will use technology, visuals, and games to keep things fun and engaging with simple language and various ways to communicate. You do not need to be tech savvy. We got you.

Guest Speakers: Self-advocates with real-life experience will share their stories and wisdom.

Topics: Bullying, friendships, safety, community advocacy, college, working, volunteering, housing, and more.

Engagement: It’s up to you! Each meeting will be facilitated to assure all have a chance to join in, ask questions, share their experience, or listen, stay quiet.

Free

PAVE P2P Staff

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Online – Teen Advocates Collective

June 25 @ 4:00 pm – 5:00 pm PDT

Join teens who are 13 – 17 years of age with disabilities to connect online to share, chat, listen, brainstorm, and shape your future!

Check it out, join monthly, or when you can.

When Do We Meet?

Day: 4th Wednesday of each month

Time: 4-5pm PT

Location: Zoom

What to expect….

Fun: Meetings will use technology, visuals, and games to keep things fun and engaging with simple language and various ways to communicate. You do not need to be tech savvy. We got you.

Guest Speakers: Self-advocates with real-life experience will share their stories and wisdom.

Topics: Bullying, friendships, safety, community advocacy, college, working, volunteering, housing, and more.

Engagement: It’s up to you! Each meeting will be facilitated to assure all have a chance to join in, ask questions, share their experience, or listen, stay quiet.

Free

PAVE P2P Staff

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Keeping Kids Busy Through Summer: Summer Camp Alternatives

Posted on by Nicol Walsh

Summer camp is an excellent way for children to spend the long summer days. However, camps are often filled quickly, and many are out of the financial reach of families. Here are some alternatives to those summer camps to entertain children and give caregivers some much needed respite.

A Brief Overview

  • There are many inexpensive ways to entertain children over the summer
  • Check with local parks and recreation for activities, including those for children and youth with disabilities
  • Washington State Parks are wonderful for exploring as a family
  • Consult with family organizations, schools, and educators for ideas and information on programs

Full Article

Local parks and recreation departments in larger communities boost their options for children over the summer. These can include sports, preschool classes, and outdoor activities. Some of the parks and rec departments, especially in larger communities, have adaptive or accessible classes, for those with disabilities and/or sensory issues. Boys and Girls Clubs have activities, classes, and day camp for a small fee. The YMCA also can offer day camp options, along with their usual sports and recreation options. For families in more rural areas, 4H has many opportunities for children and youth to engage in hands-on learning, skill building, and community interaction.

Washington State Parks provide for a wide range of outdoor activities this summer and even have special events that can be viewed on their calendar. For children four and up, their Junior Ranger Program has activities to print out and ideas for indoor and outdoor fun. For those with physical limitations, an interactive ADA map of park facilities shows the wheelchair accessible options throughout the State Park system.

Libraries often have surprisingly varied options, including reading programs, arts and crafts, educational classes, and movie nights. Many libraries now have take-home kits for creative activities to do with the whole family. Summer reading lists are available both on library websites and in-person.

Movie theaters sometimes offer sensory-friendly film viewing at certain scheduled times, check with the theater. Good for those hot afternoons!

Parent groups and family organizations are often up to date on the latest summer activity offerings around the community. The Arc of Washington and Parent to Parent are both focused on families with children with disabilities or special health care needs, are aware of many opportunities, and may even offer some events for families and kids.

Some school districts have enrichment activities over the summer beyond the extended school year (a.k.a. summer school) options. Local school district websites will have full listings for anything they may offer. Often schools and school districts also have recommendations for summer activities and information on summer events. Teachers are a useful resource for summer ideas and information, as they have heard a lot about what their students are doing this summer, so a quick chat with them may be in order.

Several websites focus on community events and classes that children and youth can be involved in over the summer. The most prominent is Macaroni kid, but others include Parent Map, and Family Day Out. The local Chamber of Commerce and local newspapers also will post some event highlights and may list on their community calendars. Summer is also the time for County Fairs and other events, many of which take place in August.

Lifespan Respite WA (a program of PAVE) has a list of registered providers that is accessible to everyone, where it is possible to find recreation and respite options by county, age served, disabilities served, and respite type. The options listed under Recreation on the “Respite Type” menu has an array of interesting options that may have flown under a family’s radar, such as equine therapy, music classes, and sensory-friendly playgrounds. Check out their page “Creative Options for a Respite Break” for more low-cost and free ideas for summer (and year-round) activities. Visit their Voucher Program page to find out if you qualify for a small grant for respite time!

Attention Students: Lead your own IEP meetings and take charge of your future

Posted on by Nicol Walsh

If you are a student with an Individualized Education Program (IEP), read this article to find out how you can be a leader on your IEP team. Your future is counting on you!

A Brief Overview

  • By the time you are 16 years old, the school is required to invite you to your IEP meetings. You can attend any time, and leading your own meeting is a great way to learn important skills.
  • The part of the IEP that focuses on your adult goals is called a Transition Plan, and it is all about you and your future.
  • If you need more help at school or aren’t learning what you need to learn, then your IEP might need some fixing. Your voice matters on the IEP team.
  • PAVE provides an infographic overview of Student-Led IEPs, available for download in multiple languages at the bottom of this article..

Introduction

It’s important to plan your time carefully so that every school day gets you closer to where you want to be when you are an adult. 

Learn to be a self-advocate

 An advocate (pronounced ad-vo-cut) is someone who asks for something in a public way. Public schools get money from the government, so they are considered public entities. When you ask the school to provide you with something that you need to succeed, then you are being a self-advocate.

The word advocate can also be an action word (a verb), but then it’s pronounced ad-vo-cate (rhymes with “date”). You advocate for yourself when you ask for what you need to succeed.

Here’s another way to use this hyphenated word: You can say that you “practice self-advocacy.” Leading your own IEP meeting is a great way to practice self-advocacy and develop important adult skills.

Your Transition Plan focuses on where you want to go

 The part of the IEP that focuses on your adult goals is called a Transition Plan. The Transition Plan is added to the IEP by the school year when you turn 16. The plan includes details about:

  • when you plan to graduate (you can stay in school until your 22nd birthday if your IEP goals require more time)
  • what jobs you might choose
  • whether college is part of your plans
  • what lifestyle you imagine for yourself (will you drive, cook, shop, live alone?)
  • how school is getting you ready for all of that

The Transition Plan is all about you and your future. You can start taking charge of your future by going to your IEP meetings. You may want to lead all or part of the meeting, and you have that right.

By the time you are 16 years old, the school is required to invite you to your IEP meetings. From that year on, your school program is matched to your long-term goals.

The law says it’s all about you

Your rights as a student with an IEP are part of a federal law called the Individuals with Disabilities Education Act (IDEA). The IDEA says that schools must include family members and students on the IEP team. If you don’t play on the team, you can’t win the game, right? This is more important than a game—it’s Your Life!

The IDEA is a unique law because it says you get what you need in order to access school and learning. Getting an education that is specially designed just for you is called an entitlement. What you are entitled to is called FAPE, which means Free Appropriate Public Education.

You can become a leader on your IEP team by learning more about FAPE and how to talk about what it means to you. Public education is free for all school-age students in the United States, but consider this question: What makes your education appropriate?

Here are some questions to help you think and talk about FAPE:

  • What is it like to have a disability?
  • What about your disability makes school hard?
  • What do you need at school that helps you learn?
  • Are you getting better and better at the skills you need to be good at?
  • Are your teachers helping you see what you do well?

If you are learning important skills at school, and your learning is helping you build on your strengths, then you are probably getting FAPE. If you need more help or aren’t learning the skills that you need to move forward, then your IEP might need some fixing. Keep in mind that the school is responsible to provide you with FAPE. You have the right to ask for FAPE.

Learn what your IEP can do for you

Here’s a starter kit to help you understand what your IEP says and how you can ask for changes. When you go to your IEP meeting, you have the right to ask the teachers and school administrators to help you read and understand your IEP.

These are some important parts of an IEP:

  • Category of Disability: This is on the “cover page” of the IEP document. It lists the type of disability that best describes why you need individualized help at school. You should know this category so you can understand how and why teachers are supposed to help you.
  • The Present Levels of Performance: This is the long section at the beginning of the IEP that describes how you are doing and what the school is helping you work on. The beginning of this section lists what you are good at. Make sure that section is complete so you can be sure the teachers help you build on your strengths.
  • Goals: When you qualified for an IEP, the school did an evaluation. You showed that you needed to learn certain things with instructions designed just for you. To help you learn, the teachers provide Specially Designed Instruction. They keep track of your progress toward specific goals in each area of learning. You can learn what your goals are and help track your progress. The I’m Determined.org website provides videos of students describing their goals and other downloadable tools, like worksheets to help you track your goals.
  • Accommodations: You can ask for what you need to help you learn in all the different classrooms and places where you spend the school day. Do you learn better if you sit in a specific part of the classroom, for example, or if you have a certain type of chair? Do you need to be able to take breaks? Do you do better on tests if you take them in a small, quiet space instead of the regular classroom? Do you need shorter assignments, so you don’t get overwhelmed? Helping your teachers know how to help you is part of your job as an IEP team member.

Get Ready for Your IEP Meeting

You can get ready for your IEP meeting by looking over the IEP document.  You may want to ask a family member or a teacher to help you read through the document. If you don’t understand what’s in your IEP, plan to ask questions at the meeting.

PAVE provides a worksheet to help you prepare for your meeting. It’s called a Student Input Form. You can use this worksheet to make a handout for the meeting or just to start thinking about things you might want to say. If you don’t want to make a handout, you might draw pictures or make a video to share your ideas.

These sentence starters might help you begin:

  • I enjoy…
  • I learn best when…
  • I’m good at…
  • It’s hard for me when…
  • I want more help in these areas…
  • I like school the most when …
  • Teachers are helpful when they…
  • I want to learn more about …
  • It would be great if…

You may want to think about your disability and how it affects your schoolwork. You could work on a sentence or draw a picture to help the teachers understand something that is hard for you. These might be the parts of a sentence that you can personalize:

  • My disability in the area of …
  • makes school difficult because…

Your handout can include a list of what you want to talk about at the meeting. Here are a few ideas, but your options are unlimited:

  • A favorite class, teacher or subject in school?
  • A time during the school day that is hard for you?
  • Your IEP goals?
  • Something that helps you feel comfortable and do well?
  • Something you want to change in your school schedule or program?
  • Graduation requirements and when you plan to graduate?
  • Your High School and Beyond Plan?
  • Anything else that’s important to you?

It’s never too soon to plan ahead!

Setting goals and making some plans now will help your school and family help you make sure you’ve got the right class credits, skills training and support to make that shift out of high school easier.

Being a leader at your IEP meeting is a great way to build skills for self-advocacy and self-determination, which is another great two-part word to learn. Self-determination means you make choices to take control of your life. At your IEP meeting, you can practice describing what helps you or what makes your life hard. You get to talk about what you do well and any projects or ideas that you get excited about. In short, you get to design your education so that it supports your plans to design your own adult life.

Learn More

Benefits to Student led IEP's
Download the Benefits to Student Led IEPs
Download the Benefits to Student Led IEPs in Vietnamese
Download the Benefits to Student Led IEPs in Korean
Download the Benefits to Student Led IEPs in simplified Chinese
Download the Benefits to Student Led IEPs in Somali
Download the Benefits to Student Led IEPs in Russian
Download the Benefits to Student Led IEPs in Spanish

Online – P2P Lunch & Learn: Lifespan Respite and Summer Camps and Recreation

February 25 @ 12:00 pm – 1:00 pm PST

REGISTER

Join us for an hour to learn about an amazing opportunity for families. Lifespan Respite is offering FREE Family Camp Respite Retreats. For individuals with an intellectual or developmental disability and their families.

REGISTER

Free

PAVE P2P Staff

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Online – Heart to Heart

March 11 @ 10:00 am – 11:00 am PDT

Register to attend

The primary goal of this peer-led group is to offer connection, mentoring, education, sharing of resources, exchanging experiences, and to promote a sense of unity among parents, individuals, and families living with medical complexities. Gain insight from the challenges and successes of others facing similar experiences.

This group supports:

Trainings: The trainings are designed to be interactive and engaging. Participants have opportunities to ask questions, participate in discussions, and share their own experiences.

Open Discussions: During meetings, families engage in open and honest discussions about various aspects of parenting children with medical complexities. Topics might include navigating the healthcare system, accessing educational resources, managing daily routines, promoting social interactions, and self-care for the whole family.

Shared Experiences: Parents share their personal experiences, challenges, and strategies they have found effective.

Register to attend

Free

Family Voices of Washington

View Organizer Website

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Online – T1D Teen Connect

March 10 @ 7:00 pm – 8:00 pm PDT

Register to join!

Are you a teenager living with type 1 diabetes (T1D)? Join our free monthly Zoom sessions for teens in Washington and across the U.S. who have T1D. Youth ages 12-19 will be able to talk with a young adult about the challenges and realities of living with T1D.

We want to help teens feel more confident about growing up with T1D. We hope your teen can join us!

This meeting starts:
7 pm Pacific Standard Time
8 pm Mountain Time
10 PM Eastern Standard Time

DOH 141-104 November 2024
To request this document in another format, call 1-800-525-0127. Deaf or hard of hearing customers, please call
711 (Washington Relay) or email doh.information@doh.wa.gov.

Register to join!

Please email us at
CYSHCN@doh.wa.gov for
questions or support.

Free

Family Voices of Washington

View Organizer Website

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Online – Teen Advocates Collective

February 26 @ 4:00 pm – 5:00 pm PST

Join teens who are 13 – 17 years of age with disabilities to connect online to share, chat, listen, brainstorm, and shape your future!

Check it out, join monthly, or when you can.

When Do We Meet?

Day: 4th Wednesday of each month

Time: 4-5pm PT

Location: Zoom

What to expect….

Fun: Meetings will use technology, visuals, and games to keep things fun and engaging with simple language and various ways to communicate. You do not need to be tech savvy. We got you.

Guest Speakers: Self-advocates with real-life experience will share their stories and wisdom.

Topics: Bullying, friendships, safety, community advocacy, college, working, volunteering, housing, and more.

Engagement: It’s up to you! Each meeting will be facilitated to assure all have a chance to join in, ask questions, share their experience, or listen, stay quiet.

Free

PAVE P2P Staff

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Online – Special Education Trainings 2024-2025 

April 9 @ 4:00 pm – 5:30 pm PDT

You must register to receive the meeting information! Register today!

Special Education Trainings 2024-2025

These trainings are supported in partnership with ESD 114

Join our virtual training sessions to learn about key aspects of the special education process. Gain valuable insights, ask questions, and connect with experts to better support students with disabilities.

Dates and Topics:

Date:   September 25th, 2024

Time: 4pm – 5:30pm

Topic:  Understanding the Special Education Process

Description: This training will bring understanding to the Special Education Process and how it works to ensure students with disabilities receive a Free Appropriate Public Education. It will also clarify the rights and responsibilities under IDEA. Participants will become knowledgeable in navigating the Special Education process from eligibility, evaluation and the development of IEPs and their implementation. After the training, an IEP Clinic is available to participants to share their questions and concerns regarding their students, Evaluations, IEPs, or meetings.

Date:     January 29th, 2025

Time: 4pm – 5:30pm

Topic: Washington State Governors Office of the Education Ombuds overview

Description:  Overview of the OEO’s work and how the office supports families, communities, and schools addressing the concerns that impact all students’ education.  There will be an IEP clinic to address individual questions and concerns.

Date:  April 9th, 2025

Time:  4pm – 5:30pm

Topic: School To Adulthood: Planning The Path

Description: This training will provide information to parents, guardians and professionals who are assisting student with disabilities in planning a path for their future. It’s never too soon to begin planning to ensure a smooth process from School to adulthood.

Date:  May 7th, 2025

Time: 4pm – 5:30pm

Topic: Assistive Technology (AT): Does my student qualify for Assistive Technology

Description: This training will cover the : What, When, How, Who, and Where of Assistive Technology for students on 504 and IEP’s.

You must register to receive the meeting information! Register today!

Free

PTI Program

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Tacoma – Young Adult Advocates Collective

March 19 @ 4:00 pm – 5:00 pm PDT

Register to join

Join other young adults 18 – 26 years of age with disabilities and connect online or in-person in Tacoma. Share, discuss, listen, brainstorm, and shape your future! Check it out, join monthly, or when you can.

When Do We Meet?

Day: 3rd Wednesday of each month

Time: 4-5pm PT

Location: Hybrid

Virtual: Zoom

In-Person:

PAVE Office

6316 S. 12th St.

Tacoma WA 98466

What to Expect…

Fun: Meetings will use technology, visuals, and games to keep things fun and engaging with simple language and various ways to communicate. You do not need to be tech savvy. We got you.

Guest Speakers: Self-advocates with real-life experience will share their stories and wisdom.

Topics: Bullying, friendships, safety, community advocacy, college, working, volunteering, housing, and more.

Engagement: It’s up to you! Each meeting will be facilitated to assure all have a chance to join in, ask questions, share their experience, or listen, stay quiet.

Register to join

Free

PAVE P2P Staff

PAVE Headquarters

6316 South 12th St.
Tacoma, Washington 98465
2535652266
View Venue Website

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Online- South Sound Autism Partnership Meeting

March 14 @ 9:30 am – 10:30 am PDT

Register to join!

The South Sound Autism Partnership is a gathering of individuals, families, providers, and organizations who are part of the Autism community within the South Puget Sound area of Washington State. Our primary purpose is to increase awareness, acceptance, and advocacy of Autism in order to provide support for our community and impact change.

This meeting supports:

Inclusive and Welcoming Environment: The support group is a safe space where all, regardless of background or experiences, are welcomed and embraced.

Information Sharing: Valuable information about autism, including the latest research, therapeutic interventions, educational strategies, and community resources, is shared within the group.

Guest Speakers and Workshops: The group might invite guest speakers, such as autism experts, therapists, educators, and medical professionals, to provide insights and guidance on various topics related to autism and parenting.

Register to join!

Free

SSAP Team

View Organizer Website

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Supporting a Neurodivergent Family Member During the Holidays

Posted on by Nicol Walsh

The holidays are a fun and festive time that can also be overwhelming, especially for those whose brains operate differently from what is typical or expected. This difference is called neurodivergence and it encompasses a variety of brain-based disabilities.

A Brief Overview

Introduction

People often see travel, new food, music, and new social situations as some of the joys of holidays, but those who are neurodivergent can find these experiences overwhelming. This doesn’t mean they dislike the holidays; it just requires some preparation to make the season inclusive and enjoyable for your neurodivergent loved one.

To achieve an inclusive experience, your loved one should feel comfortable explaining their accessibility needs and asking for support when necessary, confident that those around them will respond with understanding and accommodate their needs. Overall, special attention should be focused on providing a sense of agency, which means giving individuals control over their own choices and actions. This includes planning for neurodivergent needs ahead of time rather than improvising and hoping for the best.

Travel

Traveling during the holidays can be particularly challenging for neurodivergent individuals due to changes in routine, unfamiliar environments, and sensory overload. To support your loved one, consider planning travel itineraries that include ample downtime, familiar items for comfort, and clear, detailed schedules to reduce anxiety. Additionally, choosing quieter travel times and less crowded destinations can help create a more manageable experience. Learn more about Meeting Neurodivergent Needs While Traveling in this article.

Sensory Considerations

Sensory sensitivities are common among neurodivergent individuals, making it essential to create a holiday environment that minimizes sensory overload. This can include using soft lighting, reducing loud noises, and providing sensory-friendly activities. Offering options like noise-canceling headphones, weighted blankets, or fidget toys can also help your loved one feel more at ease during holiday gatherings. Some neurodivergent individuals may find certain textures or physical contact uncomfortable or overwhelming. Preparing scripts, promoting awareness, and supporting touch boundaries can help your loved on engage to the best of their ability and personal comfort. For tips to support sensory needs, read Creating Joyful and Inclusive Holidays: Sensory-Friendly Tips for Neurodivergent Loved Ones and download hands-on tools in Giving the Gift of Sensory Regulation, Supporting a Happy Holiday Season for All.

Social Overwhelm

Social interactions can be overwhelming for neurodivergent individuals, especially during large holiday gatherings. Creating comfortable social spaces involves setting up quiet areas where your loved one can retreat if they need a break from the festivities. It’s also helpful to establish clear social expectations and provide opportunities for smaller, more intimate interactions. Encouraging open communication needs and boundaries can ensure everyone enjoys the holiday season. To explore more strategies for supporting your neurodivergent loved one’s social challenges, check out the article: Creating Joyful and Inclusive Holidays: Comfortable Social Spaces for Neurodivergent Individuals During the Holidays.

Routine adaptations

Navigating the holidays can be particularly challenging for neurodivergent individuals when an expected routine does not happen, often referred to as a “routine violation.” Some neurodivergent individuals enjoy doing the same things daily so they feel less distressed by the unexpected aspects of life and better able to cope. For example, eating the same food for breakfast, following the same morning routine, or going on the same walk may help them maintain a sense of stability and predictability. The holidays are full of routine violations, including both fun aspects (like getting presents, which can however cause difficulties around knowing an appropriate response) and more challenging ones (such as unexpected food and not being able to do the things that help you cope).

Planning for routine violations can help, as you can make adaptations that support the individual’s needs. It’s critical to have conversations about what aspects of the routine are the most essential and identify methods to support these aspects with the individual’s feedback. For example, allowing someone to bring fruit bars for their breakfast might be a very easy way to support their daily breakfast routine. Knowing ahead of time that a loved one has a personal routine at a set time every day allows for adaptations in planning, such as driving in separate vehicles or arranging for someone they trust to transport them. Adaptations can support routines, often with little to no impact on others’ holiday experience.

Maintaining holiday traditions that offer familiarity and comfort is also important. Certain traditions, such as White elephant gift exchanges or board games, may be beloved components of every holiday. Much anticipated activities and annual traditions can also positively support routine needs, despite them happening less frequently than daily routines.

Crisis Planning

Sometimes, even with everything going as planned, things can still go wrong. In such cases, a neurodivergent crisis can appear as an individual shutting down or melting down. While a shutdown may be a less disruptive internal experience requiring a quiet space to withdraw to and recover, it is still a crisis. In contrast, a meltdown presents a more challenging situation that may be more obvious and impact others. Having a clear crisis plan ensures everyone knows what to do to support your loved one, where the person can go, and how to keep them safe while avoiding embarrassment or guilt during the holidays. Being prepared can make all the difference in managing these difficult moments effectively and fostering acceptance.

Final Thoughts

While the holidays can be a joyous time filled with celebrations and new experiences, they can also be overwhelming for neurodivergent individuals. By understanding and accommodating their unique needs through proactive planning, clear communication, and providing a sense of agency, we can create an inclusive and enjoyable holiday season for everyone. This involves thoughtful travel arrangements, sensory-friendly environments, manageable social interactions, routine adaptations, and crisis planning, ensuring that the holidays are a time of comfort and joy for all. Empowering neurodivergent loved ones to manage their needs effectively fosters a sense of belonging and acceptance within the family. By fostering an environment of understanding and support, we can help our neurodivergent loved ones fully participate in the festive spirit of the season, creating a better and more inclusive experience for everyone.

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Creating Inclusive Holidays for Neurodivergent Loved Ones

Learn More about Creating Joyful and Inclusive Holidays

This is part of a four-part series on the topic of creating joyful and inclusive holidays for neurodivergent family members. Meeting Neurodivergent Needs While Traveling provides tips and strategies to support neurodivergent individuals during travel to minimize stress. Learn Sensory-Friendly Tips for Neurodivergent Loved Ones to ensure they can enjoy the festivities and participate in making memories. Comfortable Social Spaces for Neurodivergent Individuals During the Holidays provides strategies for managing stress and overstimulation in social situations.

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Creating Joyful and Inclusive Holidays: Meeting Neurodivergent Needs While Traveling 

Posted on by Nicol Walsh

A Brief Overview

  • This is part of a four-part series on the topic of creating joyful and inclusive holidays for neurodivergent family members, which began in Supporting a Neurodivergent Family Member During the Holidays and continues in Sensory-Friendly Tips for Neurodivergent Loved Ones and Comfortable Social Spaces for Neurodivergent Individuals During the Holidays.
  • Social interactions can be particularly challenging during the holiday season due to frequent and overwhelming gatherings.
  • Neurodivergent individuals who enjoy socializing may prefer calm, predictable settings.
  • Structured social activities provide a comfortable way for neurodivergent individuals to engage with others, as they offer clear rules and a shared experience.
  • Family gatherings can be stressful due to interactions with relatives they don’t see often, leading to feelings of overwhelm.
  • It’s crucial to respect the boundaries of neurodivergent individuals, allowing them to make their own choices about social interactions and providing opportunities for breaks to avoid overstimulation.
  • Understanding and respecting their social preferences and boundaries, especially during the holiday season, helps ensure neurodivergent individuals feel safe, respected, and included.

Full Article

Navigating social interactions can be particularly challenging for neurodivergent individuals, especially during the holiday season when gatherings are frequent and often overwhelming. While some neurodivergent people enjoy socializing, they may prefer calm and predictable environments where they can engage in structured activities. Understanding their unique needs and preferences is crucial for creating a supportive and inclusive atmosphere that allows them to participate comfortably and meaningfully.

Comfort in calm familiarity

Neurodivergent people who enjoy socializing may prefer calm, predictable gatherings. They might like sitting with a friend to play video games, quietly working on a puzzle together, or playing board games. When faced with a loud, busy family gathering, neurodivergent individuals may withdraw or seek out one person they enjoy chatting with—someone who genuinely respects and understands their accommodation needs, and with whom they can happily spend time discussing a single subject. This person feels safe to them. However, it’s important to recognize that their safe person might need a break too, so having multiple people that they feel safe with can be beneficial.

Incorporating structured activities

For neurodivergent individuals, having structured social activities like board games or group video games can provide a comfortable way to engage with others. Social rules and nuances can often be confusing, making unstructured mingling feel overwhelming and unmanageable. Structured activities offer a more supportive environment for social interaction with the rules clearly identified and a shared experience to drive conversation. Baking together, wrapping presents, and completing holiday crafts are all shared experiences that have clear instructions and goals. These activities not only make socializing more manageable but also add a festive and inclusive touch to holiday gatherings.

Overstimulation with unfamiliar relatives

Even family gatherings can feel strange and stressful. Talking to relatives they don’t see often can be tough for your loved one as they work out how to talk and act around people that feel unfamiliar, even if they are family. This can be overwhelming since they have to understand and respond to different social cues and expectations that might not be easy or comfortable for them.

To help ease this stress, consider preparing your loved one in advance by discussing who will be at the gathering and what to expect. Shared interests can be a great way to connect with others and make conversations more engaging. Tell or remind the neurodivergent individual of interests they have in common with relatives they don’t see as often to help start conversations. Socializing can be challenging, so it’s important to be patient and provide support without pressure.

Supporting boundaries and choice

Even with careful planning and maintaining traditions, the holiday season can still be overwhelming. Back-to-back events can be exhausting for anyone, but they can quickly become overstimulating for neurodivergent individuals. Seeing new people or people they only see once a year, having to navigate complex social hierarchies, and often trying to hide their neurodivergent traits to fit in can be very draining. While it is important to encourage your neurodivergent loved one to engage, it’s also critical to respect their boundaries and teach them how to have agency. Agency refers to their ability to make their own choices and decisions about social interactions, ensuring they feel empowered and in control. Allowing them to sit out some holiday parties for the sake of their own wellbeing can be a gift of emotional recharge, ensuring they don’t come out of the season completely exhausted.

Conclusion

Recognizing and respecting the social preferences and boundaries of neurodivergent individuals is essential, especially during the busy holiday season. Providing structured activities and allowing for breaks can help them manage the stress and overstimulation that often accompany large gatherings. By fostering an environment of understanding and support, we can ensure that neurodivergent individuals feel safe, respected, and included, ultimately enhancing their social experiences and overall well-being.

Learn More about Creating Joyful and Inclusive Holidays

This is part of a four-part series on the topic of creating joyful and inclusive holidays for neurodivergent family members, which began with Supporting a Neurodivergent Family Member During the Holidays. Meeting Neurodivergent Needs While Traveling provides tips and strategies to support neurodivergent individuals during travel to minimize stress. Learn Sensory-Friendly Tips for Neurodivergent Loved Ones to ensure they can enjoy the festivities and participate in making memories. Finally, creating Comfortable Social Spaces for Neurodivergent Individuals During the Holidays provides strategies for managing stress and overstimulation in social situations.

Additional information: