Things I Wish I Knew on Folic Acid

As a mom of a child with Spina Bifida there are a lot of things I wish I knew.  Like I wish I knew I was going to have such a sweet little GoGo (that’s the name for her wheelchair) user before I bought a house with 15 stairs straight up.  I wish I knew that it was Read More

What Will Happen When We’re Gone? Planning for the Future for Your Child with Disabilities

Decide What You Want Thinking about what will happen to your child once you die, or are too ill to care for him or her, can be scary and raise your anxiety level. One technique is to think about what you don’t want for your child – for example, “I don’t want my son to Read More

I want the kind with the people and the pictures

By John O’Brien After a Difficult Start… Institutionalized from age three to twenty-three in a place where “they treated us like animals”– Mike has composed a good life, taking many valued roles: husband, father, worker, home owner, friend, organizer, advocate, mentor, teacher, neighbor.[1] Anticipating the changes that come with aging, Mike requested funding for a person-centered Read More

My Child, the Athlete: Coaching a Child with Hidden Disabilities

Over 30 million youth between the ages of 5-18 participate in youth sports every year. Some of the most common hidden disabilities are Specific Learning Disabilities, Speech and Language, Attention Deficit Hyperactivity Disorder, and Autism Spectrum Disorder. Athletes with these disabilities can experience similar difficulties in understanding and developing a specific skill such as understanding Read More

A Disability within Disabilities

From the age of 18 months my youngest son had severe Asthma and allergies. Seemed to be allergic to everything that grew, died or floated in the hot Arizona Desert.  He was in and out of the pediatrician’s office so often, everyone in there knew the entire family by their first names.  His most severe Read More