Stay Cool when Summer Heats Up

Summertime brings special challenges for families whose children have special needs. Some medical conditions and medications make individuals particularly susceptible to the heat. Be sure to check with your doctor about which medications might increase heat sensitivity. Keep in mind that extreme heat combined with humidity can make a person even more vulnerable. It’s harder Read More

Things I Wish I Knew on Folic Acid

As a mom of a child with Spina Bifida there are a lot of things I wish I knew.  Like I wish I knew I was going to have such a sweet little GoGo (that’s the name for her wheelchair) user before I bought a house with 15 stairs straight up.  I wish I knew that it was Read More

What Will Happen When We’re Gone? Planning for the Future for Your Child with Disabilities

Decide What You Want Thinking about what will happen to your child once you die, or are too ill to care for him or her, can be scary and raise your anxiety level. One technique is to think about what you don’t want for your child – for example, “I don’t want my son to Read More

I want the kind with the people and the pictures

By John O’Brien After a Difficult Start… Institutionalized from age three to twenty-three in a place where “they treated us like animals”– Mike has composed a good life, taking many valued roles: husband, father, worker, home owner, friend, organizer, advocate, mentor, teacher, neighbor.[1] Anticipating the changes that come with aging, Mike requested funding for a person-centered Read More

My Child, the Athlete: Coaching a Child with Hidden Disabilities

Over 30 million youth between the ages of 5-18 participate in youth sports every year. Some of the most common hidden disabilities are Specific Learning Disabilities, Speech and Language, Attention Deficit Hyperactivity Disorder, and Autism Spectrum Disorder. Athletes with these disabilities can experience similar difficulties in understanding and developing a specific skill such as understanding Read More