As a mom of a child with Spina Bifida there are a lot of things I wish I knew. Like I wish I knew I was going to have such a sweet little GoGo (that’s the name for her wheelchair) user before I bought a house with 15 stairs straight up. I wish I knew that it was Read More
Category: My Child’s Care (Medical Planning)
Individualized care plan in the event of the need of long term disability health care.
Hospital to Home
Without a doubt, one of the most stressful situations you can face as a parent is the hospitalization of your child. Whether it is a planned stay, like a surgery, or an unplanned event, parents are bombarded with a huge number of shifts in their day-to-day life and priorities. Parents are also expected to step Read More
What is a Medical Home?
A medical home is a partnership between you and your child’s doctor that makes sure your child is getting the best possible care. It is not an actual place or building you can go to. The word home means that you have a “home base” for your child’s health care needs. The medical home concept has been Read More
When Having a Medical Action Plan is Mentioned, Do You Think of your Child?
When is a Medical Action Plan necessary and do I need more than one? In a school setting a medical action plan is required if your child has a life-threatening illness or a condition (Asthma, cardiac, seizure disorders, food allergies) and/or require giving out medication and medical monitoring (Diabetes, complex on going medical needs, mental/behavioral Read More
Collaboration on Many Different Levels
This article was submitted by a parent that receives services from the Department of Services for the Blind (DSB) to share her experiences with other parents. Check out DSV’s website by cliking here By Emily Coleman My son, Eddie, was born 10 ½ years ago with Optic Nerve Hypoplasia. I learned quickly that I needed Read More
When your loved one has to be admitted to the hospital
When your loved one has to be admitted to the hospital, it can be scary, stressful, and at certain points very overwhelming not only for you, but also for the person needing the health care. What I have learned after caring for my son who was born at 26 weeks and experiences hydrocephalus (cerebral spinal Read More
Healthcare in Transition
There are many transitions in the life of a child impacted by disabilities. One transition that is often set on the back burner is the medical transition from pediatric to adult care. This transition can be significant for a young adult with developmental or intellectual disabilities because they then become the individual responsible for their Read More