Organize Your Child’s Medical and School Documents with a Care Notebook

A Care Notebook is an important tool for parents of children with special medical and school needs. This “notebook” might be a three-ring binder, an accordion file or a portable file box; it’s a place where you gather and organize important paperwork. You can include business cards and contacts, a call log, a calendar, emergency/crisis Read More

Things I Wish I Knew on Folic Acid

As a mom of a child with Spina Bifida there are a lot of things I wish I knew.  Like I wish I knew I was going to have such a sweet little GoGo (that’s the name for her wheelchair) user before I bought a house with 15 stairs straight up.  I wish I knew that it was Read More

Hospital to Home

Without a doubt, one of the most stressful situations you can face as a parent is the hospitalization of your child. Whether it is a planned stay, like a surgery, or an unplanned event, parents are bombarded with a huge number of shifts in their day-to-day life and priorities. Parents are also expected to step Read More

What is a Medical Home?

A medical home is a partnership between you and your child’s doctor that makes sure your child is getting the best possible care. It is not an actual place or building you can go to. The word home means that you have a “home base” for your child’s health care needs.  The medical home concept has been Read More

When Having a Medical Action Plan is Mentioned, Do You Think of your Child?

When is a Medical Action Plan necessary and do I need more than one? In a school setting a medical action plan is required if your child has a life-threatening illness or a condition (Asthma, cardiac, seizure disorders, food allergies) and/or require giving out medication and medical monitoring (Diabetes, complex on going medical needs, mental/behavioral Read More