Glossary of Key Terms for Life After High School Planning

ADA: Americans with Disabilities Act. Prohibits discrimination against individuals with disabilities in all public and private places open to the general public.

Adult Services: Programs available to support individuals after they become legal adults at 18.

Age of Majority: In Washington, 18. An adult is responsible for educational, vocational, financial, and other decisions unless other arrangements are made through legal means.

Aging Out: The process of ending the school year in which a student turns 21 and is no longer eligible for special education (IEP) services.

Compensatory Services: Extra educational services provided because an IEP team or another agency with authority determines that a student with a disability did not receive a Free Appropriate Public Education (FAPE).

DDA: Developmental Disabilities Administration. A state agency that provides a variety of employment, personal care, supportive housing, and other services based on eligibility. Transition-age youth may be eligible for a school-to-work program if one is available in their region.

DSB: Department of Services for the Blind. A state agency that provides vocational services and orientation and mobility training for individuals with visual impairments.

DVR: Division of Vocational Rehabilitation. A state agency that provides employment services to individuals with a wide range of disability circumstances. Students still enrolled in school might receive Pre-Employment Transition Services (Pre-ETS), and young adults also might apply for 1:1 support with an Individualized Plan for Employment (IPE). The agency has a wait list, called Order of Selection, for 1:1 IPE support but not for Pre-ETS.

Educational Evaluation: Used to determine eligibility for school-based services. A wide variety of assessments, questionnaires, and other tools determine how disability impacts a student’s ability to access academic and non-academic areas of education and whether specially designed instruction is needed to access FAPE.

Equity: A quality of fairness that is present when someone with a disability has appropriate, individualized help to enable the same access to opportunities that are available to individuals without disabilities.

ESSA: Every Student Succeeds Act. A 2015 law that reauthorized the 50-year-old Elementary and Secondary Education Act (ESEA), the nation’s education law that provides equal opportunity for all students.

FAPE: Free Appropriate Public Education. Learning that is equitable, accessible, and meaningful. FAPE is what a student with a disability is entitled to receive from the school, based on documented, individualized needs.

High School and Beyond Plan (HSBP): a future planning tool that is required for all Washington State students, beginning no later than 8th grade.

IDEA: Individuals with Disabilities Education Act. Federal law that grants funding to states to support educational programming for eligible students with disabilities. IDEA Part B supports children 3-21, and Part C supports children Birth-3.

IEP: Individualized Education Program. A unique school services plan for a student who is eligible based on disability circumstances, managed and documented by a team that includes family members and professionals.

IEP Transition Plan: A component of the IEP that is required by age 16 but can be added any time the student and IEP team are ready to discuss future goals and incorporate them into the student’s program, with goals and progress monitoring that consider life plans.

Inclusion: An environment where individuals with disabilities and without disabilities are learning or working together. The IDEA requires schools to deliver FAPE in the Least Restrictive Environment to encourage the inclusion of all students in general education spaces.

Individualized Plan for Employment (IPE): A service plan with support from a vocational rehabilitation agency.

Kevin’s Law: A Washington State law stating that a student receiving special education services has the right to participate in commencement ceremonies with same-age peers, regardless of when a diploma is earned.

LRE: Least Restrictive Environment. IDEA requirement that students receive special education services in general education settings to the maximum extent appropriate. Schools document why a student is unable to access FAPE within LRE (general education) before placing a student in a restrictive setting.

OCR: Office for Civil Rights. An enforcement agency that manages formal complaints and provides information about civil rights that protect individuals from discrimination based on race, gender, disability, and other factors. The U.S. Department of Education Office for Civil Rights is a federal agency with the responsibility of ensuring equal access to education through the enforcement of civil rights.

OEO: WA Governor’s Office of the Educational Ombuds: State agency that provides free online resources and 1:1 support for families navigating educational systems. 

OSEP: Office of Special Education Programs. Federal agency within the US Department of Education that is responsible to administer the Individuals with Disabilities Education Act (IDEA).

OSERS: Office of Special Education and Rehabilitative Services. US Department of Education program with a mission “to provide leadership to achieve full integration and participation in society of people with disabilities by ensuring equal opportunity and access to, and excellence in, education, employment and community living.”

OSPI: Office of Superintendent of Public Instruction. Washington’s educational agency that partners with the state’s nine Educational Service Districts (ESDs) to provide guidance to Local Education Agencies (LEAs) that include 295 districts and 6 state-tribal education compact schools.

PAVE: Partnerships for Action, Voices for Empowerment. A non-profit agency that supports Washington families impacted by disability. A PAVE program is Parent Training and Information (PTI), which provides information, training, resources, and technical assistance to help family caregivers, students and professionals understand rights and responsibilities within education systems.

Person Centered Planning: A method for helping an individual explore and celebrate life goals while building specific action steps and gathering people to offer support.

Pre-Employment Transition Services (Pre-ETS): Provided for groups of students by a vocational rehabilitation agency. In Washington DVR provides Pre-ETS for many disabilities, and DSB provides Pre-ETS for students with visual impairment. Included are job exploration, work-based learning experiences, counseling about educational opportunities, workplace readiness training, and instruction in self-advocacy.

Prior Written Notice (PWN): A required document that schools provide families after formal meetings. The PWN summarizes what was discussed and any agreements, disagreements, action items, or amendments to a student’s Individualized Education Program (IEP). A family/school communication plan can be designed at a meeting and documented in the PWN.

Procedural Safeguards: Written description of special education process, student/family rights, and options for dispute resolution.

Recovery Services: Additional educational opportunities considered to support students significantly impacted by the national health emergency caused by COVID-19.

School-to-Work: Programs available in many counties for students eligible for support from the Developmental Disabilities Administration (DDA).

Secondary Transition: Planning for and progressing through the change from high school to adult life.

Section 504: Part of the Rehabilitation Act of 1973.  Provides anti-discrimination protections for individuals with disabilities throughout the lifespan.

Self-Advocacy: Ability to share thoughts and feelings, understand rights and responsibilities, make independent choices, and ask for help when needed.

SMART Goals: Specific, Measurable, Achievable, and Relevant goals set within a specific span of Time.

Synchronous/Asynchronous Instruction: Educational methods during distance learning. Synchronous instruction is provided when school staff directly interact with students in “real time,” whereas asynchronous instruction is recorded, independent, or parent-supported learning without school staff directly present.

Transition Services: Programming uniquely designed to support a student in preparation for adult life. Needs,  strengths, preferences, and interests are considered for development of specially designed instruction, related services, community experiences, employment and other postschool adult living objectives. If appropriate, services include acquisition of daily living skills and provision of a functional vocational evaluation.

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High School Halt: Ways to Support Youth Working on Adult Life Plans During COVID-19

A Brief Overview

  • The pandemic and its impact on education may feel especially confusing for youth working toward graduation and life-after-high-school plans. Read on for information about how to support young people working on their diplomas and goals for college, vocational education, independent living, and more.
  • The state continues to navigate questions related to graduation pathways and credit requirements for students impacted by COVID-19. This article includes links to resources where information is regularly updated.
  • Students learning from home may need support to organize their days and incorporate the activities of daily living into their educational programs. This article includes some ideas for organizing at-home learning.
  • Another article from PAVE provides more information about vocational rehabilitation options for young people, during COVID and beyond: Ready for Work: Vocational Rehabilitation Provides Guidance and Tools.

Full Article

The COVID-19 pandemic and its impact on education may feel especially confusing for those who are working toward graduation and life-after-high-school plans. Parents and students may be wondering what will enable students to complete work toward their diplomas, meet college admission requirements or continue work toward vocational and/or independent living goals.

Since March 2020, the National Technical Assistance Center on Transition (NTACT) has provided webinars and other materials to promote home-based learning for transition-age youth with disabilities. This article includes some of NTACT’s ideas. The agency’s website provides webinar recordings and additional materials: Transition Resources in the 2020-2021 School Year.

In collaboration with the Center for Parent Information and Resources (CPIR/ParentCenterHub.org), NTACT provides an interactive tool for young people: Secondary Transition Considerations and Guiding Questions for Youth Exiting from High School. Throughout the document, a young person is guided to a variety of links and resources based on the way questions are chosen and answered. For example, “Things you can do now to help meet your postsecondary employment goal” provides a set of suggestions:

“Make a list of your career interests, the best work location for you, and types of jobs that best fit your skills. If you aren’t sure what jobs or careers interest you, explore your options at ‘Get My Future’ on the Career One Stop website.”

Graduation requirements shift

The Washington State Board of Education (SBE) provides information about graduation impacts of COVID-19. SBE in summer 2020 began a rulemaking process to provide districts more flexibility to:

  • Award credit based on demonstration of mastery or competency
  • Offer courses that meet more than one subject area graduation requirement
  • Waive the Washington state history requirement for some students impacted by school closures or other disruptions. Waivers are individually determined.

The State Legislature passed a law in response to coronavirus (EHB 2965) that supported emergency waivers for the graduating Class of 2020. The goal was to ensure that students on track to graduate would not be held back because of the pandemic.

Graduation standards and requirements also are impacted by a 2019 law that provides multiple pathways toward a diploma. The Office of Superintendent of Public Instruction (OSPI) offers a website page describing the Graduation Pathways, with toolkits for families and students.

For a student eligible for an Individualized Education Program (IEP), the IEP team determines what criteria are met for the student to earn a diploma and the timeline for graduation. Families are encouraged to reach out to IEP team members, district staff, and school counselors to collaborate on how the IEP and graduation targets are adjusted in light of the pandemic.

Recovery services and/or compensatory services may be available

The Office of Superintendent of Public Instruction (OSPI) provides a 60-page booklet: Reopening Washington Schools 2020: Special Education Guidance. The guidance defines recovery services, as “additional, supplemental services needed to address gaps in special education service delivery due to COVID-19 health and safety limitations, of which districts had no control.”

Compensatory services are provided as a remedy when a school is found through a dispute resolution process to have denied a Free Appropriate Public Education (FAPE). By federal law (Individuals with Disabilities Education Act/IDEA), a student with an IEP is entitled to FAPE, which provides an individualized program to enable progress appropriate in light of a student’s unique circumstances. Those circumstances include strengths and assets, disability condition, family considerations, the pandemic, and more.

Students in transition programs who aged out during Spring 2020 may be eligible for recovery and/or compensatory services. Other students who missed key learning also could be eligible. Families can reach out to their IEP teams and/or district special education program staff to discuss options. Data about school/family communications, accessibility of educational materials, and IEP/transition services provided/not provided will contribute to conversations about recovery/compensatory services.

Creativity may be needed to ensure educational access in all areas of learning, including those related to the transition into adulthood. OSPI’s guidance includes a section on Graduation & Secondary Transition, with step-by-step instructions for educators supporting youth with transition programming:

“Secondary transition is more than providing pathways for the individual’s movement from high school to employment,” the guidance states. “It is a comprehensive approach to educational programs, focused on aligning student goals with educational experiences and services. When we move these activities to the continuum of reopening models, we have to stretch our thinking about how this can be done.”

What about college admission requirements?

Students who are college-bound may have questions about admissions requirements and whether they can still be met. The National Association for College Admission Counseling has encouraged colleges to be flexible and has created a central resource for information related to Coronavirus and College Admission.

How can I help my student organize the day to include learning?

NTACT offers a range of downloadable Transition Focused Instructional Resources, including tools to help with scheduling and others for helping young people stay socially connected. In a March 24 webinar, the agency encouraged creative ways to support regular work in each of the key areas of learning for a student with an IEP:

  • Life skills
  • Self-determination
  • Self-advocacy
  • Desire to work
  • Enriching experiences
  • Appropriate goals

Teachable moments might include real-life situations related to the pandemic and a new routine. Students still can have the opportunity to make choices and to live with the consequences of choices and actions. For example, a student-made meal might not be gourmet but can be enjoyed on its merits of life-skill-building and risk-taking.

How can the IEP support work at home?

NTACT recommends development of a consistent routine and documentation of daily work and any progress or regression. To help with planning, anyone supporting the student can take a close look at the current IEP.

The Present Levels of Academic Achievement and Functional Performance, which are built from evaluation results, can provide inside about the student’s strengths, interests, and capacities. Annual goals will highlight the areas of specially designed instruction being provided through the IEP. Consider how instruction might be adapted for at-home instruction—or whether a more suitable goal might be considered. School staff and family members can collaborate to set up a shared approach.

For a student older than 16, a post-secondary transition plan is included in the IEP and includes projections about adult goals and the skills being worked on to get there. NTACT provides Choice Boards to support ongoing work in three key areas that are aspects of a transition plan:

  • Career exploration
  • Education and training
  • Independent living

The Choice Boards are pre-loaded with resource linkages and suggestions.

Think into the future

PAVE provides a webinar and a comprehensive article about life-after-high-school planning with further guidance about the transition process in general. More time at home together might give families a good opportunity to sit back and consider key questions to help the student make future plans:

  1. Where am I now?(strengths, interests, capacities—the Present Levels of Performance in the IEP)
  2. Where do I want to go?(aspirations, dreams, expectations—Transition Plan Goals in the IEP)
  3. How do I get there?(transition services, courses, activities, supports, service linkages, community connections, help to overcome barriers—Annual Goals, Accommodations and other provisions included in the IEP)

What can we do at home today?

Consider how transition programming can be adapted to current circumstances so a young person continues to be connected to important relationships and inspired toward the future. Daily successes are to be celebrated, and high expectations elevate everyone. Below are some typical home-based subject areas that might support learning and skill-building, with a few linkages to resources that might help.

  • Leisure and Recreation
  • Home Maintenance
    • Organizing
    • Cooking
    • Cleaning
    • Yard Work
  • Personal Care
  • Finances
    • Budgeting—Cents and Sensibility from the Pennsylvania Assistive Technology Foundation provides an approach for individuals with autism.
    • Practice with money by paying for things throughout the day
  • Communication
    • Letter and email writing
    • Webinars
    • Phone calls/interview a friend or relative about their career path and write about it?

Other places that provide vocational questionnaires and forecasting tools

  • AgExplorer.com helps students imagine themselves in fields related to farming and beyond
  • ExploreWork.com helps students with disabilities consider their strengths and interests and how to relate them to work options
  • RAISECenter.org offers a variety of tools related to vocational rehabilitation. (RAISE stands for Resources for Advocacy, Independence, Self-determination and Employment.)
  • CareerOneStop.org, sponsored by the US Department of Labor, provides career assessments through its website and a mobile app.
  • Options for further information related to higher education
  • ThinkCollege.net
  • OffToCollege.com
  • ParentCenterHub.org provides a library of college preparation resources related to specific disability categories

For additional ideas about supporting a student with in-home learning please refer to PAVE’s Links for Learning at Home During School Closure.

Please note that any resource list provided by PAVE is not exhaustive, and PAVE does not endorse or support these agencies. Links are provided for information only.

Ready for Work: Vocational Rehabilitation Provides Guidance and Tools

A Brief Overview

  • Vocational rehabilitation (VR) is a federal right that has not been waived during school and office closures related to COVID-19. Pre-Employment Transition Services (Pre-ETS) are one way to get support. Another is through 1:1 counseling and an Individualized Plan for Employment (IPE).
  • The best way to seek DVR services for a student still working toward graduation is to contact the DVR counselor assigned to the student’s school. DSHS maintains an interactive map, Find a School Transition Counselor.
  • Families and students also can reach out to regional DVR staff for information about how to access services, including summer camps and programs.
  • Individuals with vision impairment and blindness are served through a separate vocational rehabilitation agency in Washington State, the Department of Services for the Blind (DSB).
  • Graduating seniors can seek DVR and DSB services now!

Full Article

Teenagers and young adults with disabilities have additional considerations when deciding what life looks like after high school. The transition planning process, which begins in middle school and continues through high-school graduation and beyond, is extra challenging with social distancing measures and uncertainty about how jobs and higher education are impacted by the COVID-19 pandemic.

In Washington State, young people can get help from the Division of Vocational Rehabilitation (DVR), which is housed within the Department of Social and Health Services (DSHS). DVR staff are working remotely and creatively to continue providing services to adults and students during office and school closures, says Chelsie Gillum, a Regional Transition Consultant (RTC) in Pierce County.

DVR services are a civil right

The right to vocational rehabilitation (VR) services is an aspect of Title 1 of the amended Rehabilitation Act of 1973. In 2014, the Rehabilitation Act, which guarantees equitable access to public spaces and programs, was further amended to include the Workforce Innovation and Opportunity Act (WIOA).

Pre-Employment Transition Services (Pre-ETS) were already an aspect of the Rehabilitation Act, but WIOA further defines Pre-ETS and requires that VR agencies set aside 15 percent of their funding to provide or arrange for the provision of Pre-ETS.

Note that Section 504 is also a feature of the Rehabilitation Act. Section 504 guarantees the right to accommodations for equitable access in public facilities and programs and is the basis for a student’s “504 Plan” that provides accommodations, modifications, and anti-discrimination measures for educational access. Section 504 protections aren’t limited to school: Like the Americans with Disabilities Act (ADA), Section 504 protect a person in higher education, work, and elsewhere throughout the lifespan.

None of these federal rights have been waived during COVID-19.

Pre-ETS may include summer options

Gillum is among DVR staff who support groups of students with Pre-ETS. Generally, programs include job exploration, work-based learning, counseling about further educational options, workplace readiness and self-advocacy training. Some programs are being offered online or through other distance delivery methods in Summer 2020.

For example, a Youth Leadership Forum is being organized as a weeklong virtual camp in July 2020. A Facebook page for YLF is one way to learn more. Junior Achievement: Finance Park is another summer option for students statewide who want to learn more about personal finance and business. Families and students can reach out to regional DVR staff for specific information about these and other options for summer and beyond.

“Just because you cannot attend a camp in-person does not mean you have to miss out on valuable work readiness training and work-based learning experiences,” Gillum says.

Gillum says virtual job fairs, recorded informational interviews and virtual tours of job sites are options during social distancing. “Agencies and businesses are still hiring,” she says. “DVR applications are being processed, and intake meetings are being conducted.”

Gillum encourages 2020 graduating seniors to seek services right away: “I want to make sure our graduating students are as connected as possible, especially given how uncertain the world is right now,” she says.

Pre-ETS can start at ages 14-16 or later

Students with Individualized Education Programs (IEPs) can receive Pre-ETS as young as age 14, if the IEP includes a Transition Plan. An IEP team can write a Transition Plan into the IEP whenever the student, family and school staff are ready to begin that process. DVR staff can support that work, Gillum says, and families can initiate those contacts.

The Individuals with Disabilities Education Act (IDEA), the federal law that governs special education process and protects the rights of eligible student, requires that an IEP include a Transition Plan by the school year in which the student turns 16. PAVE provides an article and a video about the high-school transition process in general. In addition, PAVE has an article about graduation and life-planning impacts of the shutdown: High School Halt.

Students 16 and older can receive Pre-ETS from DVR if they have an IEP, a Section 504 Plan and/or a documented disability and a family caregiver and school staff sign a DVR consent form. If the student is 18 or older (educational age of majority in Washington), the student and school staff sign the DVR form.

Families and students can contact DVR directly

Gillum says the best way to access the 2-page consent form and begin services is to contact the DVR counselor assigned to the student’s school. DSHS maintains an interactive map on a page called, Find a School Transition Counselor. By entering the county, school district, and name of the school, families can get a name and phone number for the DVR staff member assigned to their specific school.

Families also can look on DVR’s Pre-Employment Transition Services website page and scroll down to the chart that lists Regional Transition Consultants by area/county and includes phone numbers.

Families, schools, and students will need to work collaboratively to provide the required signatures for consent forms during the pandemic. Scanned versions may suffice in the short term, although mailed copies may eventually be required. A DVR counselor can provide guidance about the best methods for submitting the required forms to begin services.

Services for the blind are managed separately

Individuals with vision impairment and blindness are served through a separate vocational rehabilitation (VR) agency in Washington State. The Department of Services for the Blind (DSB) provides Pre-ETS and VR for clients statewide and maintains an Orientation and Training Center (OTC), to help individuals learn to navigate the world with limited or no vision, in Seattle.

DSB continues to serve clients during school and facility closures, says Michael MacKillop, Acting Executive Director. In early spring, 2020, MacKillop noted that DSB had been able to serve all clients who qualified for services, clearing a waitlist that is part of the state’s Order of Selection to serve clients within its budget.

Order of Selection impacts access to 1:1 DVR support

DVR also operates with Order of Selection when clients apply for individualized vocational rehabilitation (VR) counseling. The Individualized Plan for Employment (IPE) is a DVR program that is separate from Pre-Employment Transition Services (Pre-ETS). The IPE is supported 1:1, whereas pre-employment services are generally provided to groups of students.

Through Order of Selection, individuals with the highest needs for support are prioritized for 1:1 support from a DVR counselor. When developing an IPE, the client and counselor establish a goal for employment; the counselor provides coaching, logistical and sometimes financial support to help make that happen. The case remains open until the employment goal is met if the client remains meaningfully engaged in the process. IPE services might include educational support if further education is needed to achieve a job goal.

Can a student get Pre-ETS and 1:1 help?

A student might receive services through both programs—Pre-ETS and the Individualized Plan for Employment (IPE). However, families should be aware that there are some specific rules related to Order of Selection.

  • If a student is already participating in Pre-ETS, the student can apply for an IPE and Order of Selection will not impact the student’s ongoing engagement in Pre-ETS.
  • If the student applies for an IPE first and is put on a waiting list, then the student also will have to wait to begin Pre-ETS.
  • A student will have more access to DVR services by engaging with the Pre-ETS first and then considering whether to also apply for individualized support.

Signing a consent form with DVR is the first step

The family and school need to work together to complete DVR’s consent form before services can begin. Some programs, including summer camps, require a student to be officially enrolled in Pre-ETS. Completing the consent form is a first step.

Services from DVR expand work underway at school

Note that all students in Washington work with counselors and other school staff on a High School and Beyond Plan, which includes interest surveys and career cruising, encourages volunteer work, and provides an organizational method to ensure that a student’s work in school strengthens a pathway toward adult goals. The state requires this planning to begin in Middle School, by 7th– 8th grade, for all students.

Summary of Tools for Transition

To summarize, a student with a disability has a set of possible tools to support the high-school transition and plans for higher education, work, and independent living:

  1. High School and Beyond Plan (HSBP)—described on the website of the Office of Superintendent of Public Instruction (OSPI). The HSBP is a tool for all Washington students and required to begin by 8th
  2. IEP Transition Plan—described by OSPI in a booklet, Guidelines for Aligning High School & Beyond Plans (HSBP) and IEP Transition Plans. A Transition Plan is an IEP requirement by age 16.
  3. Pre-Employment Transition Services (Pre-ETS) from DVR, for students with a documented disability who may have an IEP, a Section 504 Plan or no plan. A student does not need to be eligible for DVR case management to receive Pre-ETS.
  4. An Individualized Plan for Employment (IPE), if eligible, with 1:1 DVR support
  5. Person Centered Planning is another tool: PAVE provides an article about PCP, with reminders that sessions can happen in person or virtually.

Key elements of Pre-Employment Transition Services (Pre-ETS)

Pre-ETS include five required services. Each service in this list is linked to a resource for further investigation. DVR counselors can provide additional resources to suit an individual’s unique circumstances:

  1. Job exploration counseling: career speakers, interest and ability inventories, investigation of labor market statistics and trends, and more
  2. Work-based learning experiences: in-school or after school opportunities, including internships, provided in an integrated environment to the maximum extent possible. According to the Brookings Institution, work-based learning is predictive of future job quality.
  3. Counseling on opportunities for further education: How to complete the Free Application for Federal Student Aid(FAFSA®) and how to locate disability resource centers at colleges and universities are part of college readiness.
  4. Workplace readiness training to develop social skills and independent living
  5. Instruction in self-advocacy, which may include peer mentoring, training in disability disclosure, and more

Work-based learning and work readiness programs are generally provided by agencies that contract with DVR, says Gillum from DVR in Tacoma. “Transition consultants oversee those contracts and help connect students and agencies to develop a service plan.”

Why VR is worth the work and where to go for more information

Research shows that access to an array of collaborative services during high school improves post-secondary outcomes, especially when school staff and service providers get to know one another and there are “warm hand-offs” between individuals who develop trusted relationships with the young person, according to data shared by the National Technical Assistance Center on Transition (NTACT). Another place for data and detail about WIOA is the Workforce Innovation Technical Assistance Center (WINTAC).

Engagement with vocational rehabilitation services is supported by initiatives endorsed by the U.S. Department of Labor and its Office of Disability Employment Policy (ODEP). These federal agencies promote the concept of Employment First, a framework for systems change centered on the premise that all citizens, including individuals with significant disabilities, are capable of full participation in integrated employment and community life. 

The PACER Center, a Minnesota-based agency founded in 1977 to promote a “parents helping parents” philosophy, supports the National Parent Center on Transition and Employment, which offers a collection of materials with more information about vocational rehabilitation and how to benefit from pre-employment and employment services. Included in the PACER Center’s materials is a booklet for parents to help young people prepare for college and careers.

Washington’s DVR program provides a video about the school-to-work transition with young people talking about their experiences with the agency and how it helped.

Chelsie Gillum from the Pierce County region of DVR encourages young people and families to contact DVR despite the pandemic. “Even if vocational rehabilitation services are not what you need immediately,” she says, “our team can help connect you with other resources to help you during the pandemic. We appreciate your patience and flexibility as we all adjust to meet people’s needs in this ever-changing landscape. We cannot wait to hear from you!”

 

Adolescent Health Care Act Provides Options for Families Seeking Mental Health and Substance Use Help for Young People Resistant to Treatment

A Brief Overview

  • The Adolescent Behavioral Health Care Access Act, passed into law by the Washington Legislature in 2019, gives parents and providers more leverage in treating a young person who won’t or can’t independently seek medical help for mental illness and/or substance use disorder.
  • The Washington State Health Care Authority (HCA) in March 2020 launched several website links with information about the new law, which includes an option for Family Initiated Treatment (FIT).
  • The Washington State Hospital Association on July 9, 2019, provided a slide presentation describing the law’s history and its primary features.
  • A place to connect with other families concerned about adolescent mental healthcare access in Washington State is a group called Youth Behavioral Healthcare Advocates (YBHA-WA) on Facebook. Included on the page are handouts that summarize key aspects of the new law. 

Full Article

Getting mental health help for a youth in crisis can be complicated, frustrating and frightening.

Mental Health America ranks states based on the incidence of mental illness and access to services. The agency’s 2020 rankings list Washington in the 43rd position, based on various measures that indicate a higher prevalence of mental illness and lower rates of access to care.

Often a barrier to treatment is the youth, who may not be able to see a problem or want to get professional help. Parents often struggle to navigate systems that must balance a young person’s autonomy with concern that they may not be able to make good decisions because of their development, specific illness circumstances or symptoms that impact the brain.

In Washington State, the age of medical consent is 13. That means that a person 13-17 years old can independently seek medical treatment, without the consent or knowledge of parents.

Age of consent laws also have meant that Washington youth could say no to mental health or substance use treatment, regardless of whether parents and providers agreed that such treatment was necessary to protect the safety and well-being of the adolescent.

A law passed by the Washington legislature in 2019 gives parents and providers more leverage when a young person is struggling with a mental illness or substance use disorder and won’t independently engage with treatment. The law does not limit an adolescent’s ability to initiate treatment on their own.

A January 8, 2020, article in Crosscut profiles several families impacted by the new law. “Until the new law,” the article states, “parents often were shut out of their teenager’s care and treatment plans and couldn’t push a teen toward necessary outpatient or inpatient care without their consent.”

The Adolescent Behavioral Health Care Access Act enables parents/caregivers to bring a child for inpatient or outpatient treatment without requiring consent from the child, ages 13-17. The law includes elements introduced by the state Senate and House of Representatives, which originally titled the bill as HB 1874.

Passage of the law was a win for the Children’s Mental Health Work Group, which studied and reviewed recommendations from a stakeholder advisory group authorized by the 2018 legislature. The final version of the law included input from family members, youth, clinicians, hospital staff and many others who met dozens of times. A June 13, 2019, slide presentation available online provides additional history and detail about the work group and its recommendations: Family Initiated Treatment and Engaging Families in Treatment of Youth. The webinar with sound is available on YouTube.

The 2020 legislature is considering amendments to the law, and the Children’s Mental Health Work Group continues to meet to consider proposals to clarify provisions that relate to residential treatment and referrals for Wraparound with Intensive Services (WISe).

“Parent” is broadly defined

The 2019 law expands the definition of parent to include a wide range of family caregivers, guardians and others who have authority to initiate treatment. The Revised Code of Washington (RCW 9A.72.085) provides standards for “subscribing to an unsworn statement” that can apply to a caregiver initiating treatment. 

Note that parents retain the right to make medical decisions for children younger than 13, and adults 18 and older are responsible for medical decision-making if there is no guardianship.

A substantive change with the 2019 law is that providers may share mental health information with parents without an adolescent’s consent, if the provider determines that information sharing with family is in the best interests of the adolescent patient. A list of information-sharing guidelines is included below.

How Family-Initiated Treatment Works

If a parent/caregiver believes that an adolescent requires mental health or substance use disorder treatment, the adult can escort the young person to an inpatient or outpatient treatment facility even if the adolescent doesn’t readily agree to go.

A provider will assess the adolescent and consider information from the family to determine whether treatment is medically necessary. An adolescent’s refusal to engage with the provider cannot be the sole basis for refusing to treat.

An inpatient facility can detain the adolescent under Family-Initiated Treatment (FIT) if medically necessary. Note: another option could be detention under the Involuntary Treatment Act (ITA), if the adolescent is determined to be gravely disabled or at imminent risk of self-harm or harm to others.

If medical necessity is found by an outpatient provider, a counselor is limited to 12 sessions over 3 months to attempt to work with the adolescent. If the young person still refuses to engage with treatment, then the period of Family-Initiated Treatment with that provider ends.

State laws continue to encourage autonomy for young people, but family engagement is encouraged. According to the Revised Code of Washington (RCW 71.34.010):

 “Mental health and chemical dependency professionals shall guard against needless hospitalization and deprivations of liberty, enable treatment decisions to be made in response to clinical needs in accordance with sound professional judgment, and encourage the use of voluntary services. Mental health and chemical dependency professionals shall, whenever clinically appropriate, offer less restrictive alternatives to inpatient treatment. Additionally, all mental health care and treatment providers shall assure that minors’ parents are given an opportunity to participate in the treatment decisions for their minor children.”

Guidance for Information Sharing

Federal law, 42 CFR Part 2, restricts information sharing related to substance use, and clinicians cannot share that information without a patient’s written consent, regardless of whether the substance use co-occurs with mental illness.

Providers have discretion in determining what information about mental health diagnoses and treatment is clinically appropriate to share with parents of an adolescent 13-17. A provider retains discretion in withholding information from family/caregivers to protect an adolescent’s well-being. In general, the Adolescent Behavioral Healthcare Access Act encourages sharing information to support collaboration between the clinical setting and home. Specifically, providers and families are encouraged to discuss:

  • Diagnosis
  • Treatment Plan and Progress
  • Recommended medications, including risks, benefits, side effects, typical efficacy, dosages and schedule
  • Education about the child’s mental health condition
  • Referrals to community resources
  • Coaching on parenting or behavioral management strategies
  • Crisis prevention planning and safety planning

Information about state laws related to Behavioral Health Services for Minors is available through the Washington State Legislature website under RCW 71.34.

Information about child and youth behavioral health services in Washington State is available from the Health Care Authority (HCA).