Kinship Families: Early Intervention, Special Education, and 504 Plans

Kinship families are created when a relative or close family friend raises a child or children when parents can’t. The relative or friend is often referred to as a “kinship caregiver”. This article will be helpful for new kinship caregivers and long-term kinship caregivers if their child or children has or develops a disability. This article focuses on early intervention and special education for children with disabilities in Washington State. It describes early intervention and special education and how to get those services or alternative services.  

It has information about situations like: 

  • The child got special education or had a 504 plan at their previous school 
  • The child received early intervention services with their birth or previous family 
  • A kinship caregiver thinks a child does not have the usual skills for their age, or they are not doing well in school, and the caregiver thinks it may be due to a disability 

This article also has information about the school enrollment process and documents needed and the right to go to school in Washington which applies to all children whether or not they have a disability. 

For schools, who can act as a parent?

Many different people may be defined as parents under the Individuals with Disabilities Education Act (IDEA), a U.S. federal law which makes sure eligible children with disabilities receive a free, appropriate public education (FAPE). It covers children from birth through age 21.   

The definition of a parent states: 

(1) A biological or adoptive parent of a child; 
(2) A foster parent, unless State law, regulations, or contractual obligations with a State or local entity prohibit a foster parent from acting as a parent; 
(3) A guardian generally authorized to act as the child’s parent, or authorized to make educational decisions for the child (but not the State if the child is a ward of the State); 
(4) An individual acting in the place of a biological or adoptive parent (including a grandparent, stepparent, or other relative) with whom the child lives, or an individual who is legally responsible for the child’s welfare; or 
(5) A surrogate parent who has been appointed in accordance with § 300.519 or section 639(a)(5) of the Act”.   

Kinship caregivers may fall under one or more of these categories. It’s important for kinship caregivers to understand what their rights and responsibilities are about their child’s education. If kinship care does not involve legal steps to remove a parent’s rights, the birth/biological parents still have the right to make decisions about their child’s education, such as:

  • Where the child goes to school 
  • Whether the child can get special education services and supports or a 504 plan 
  • What goals, services, etc. are written on the IEP 
  • Notifications about and the right to attend IEP meetings (remotely, if necessary). 

In WA State, the school will, based on the law above, assume you have the right to make educational decisions about the child, but the child’s parents can still intervene if they wish. 

There is information available about kinship care situations where the kinship caregiver has rights to make educational (any many other) decisions for the child. Those situations (statuses) may include guardianship of a minor child, adoption, or getting a Power of Attorney from the birth parents to make certain decisions about the child’s education and other areas. WA State’s Kinship Navigators can connect you with legal aid resources. One online source is Washington Law Help, a “public law library” for legal information in WA State. It’s maintained by the nonprofit Northwest Justice Project and explains legal terms and legal situations with easy-to-understand wording in English, Spanish, and 8 other languages commonly used in Washington.

School Enrollment

Documents you may need: 

  • Something that verifies your address, like a utility bill 
  • Something that confirms the child’s age, like a birth certificate or a certified doctor’s statement 
  • A record of the child’s immunizations 

The WA State Governor’s Office of the Education Ombuds is the state’s problem-solving office for educational issues or questions. On their website they write: 

“Schools often list examples of the kinds of documents you can use for enrollment. If you do not have the specific documents that the school generally requires (like a copy of bills, or a birth certificate for your child), talk to the school enrollment office about your situation.

Alternatives to Birth Certificates/Passports: Schools must accept alternatives to show a child’s age or date of birth. The school cannot insist on receiving a birth certificate or passport if you do not have one. Other alternatives might include an adoption record, a certified statement of a physician, or an immunization record with a birthdate on it. 

Proof of Residency: Schools generally ask for proof of where you are living in order to be sure your child is a resident of the district. However, if you are currently without a regular place to live (if you are experiencing homelessness), the school cannot require documents before enrolling your child. If this might apply to you or a child you are caring for, ask at the school or district office to talk with the school district’s “McKinney Vento Liaison.” 

Remember, all children who live in Washington State have the right to access public education. If you are trying to enroll your child in school, but you do not have the paperwork the school usually requires, please ask for help. 

You can ask for help at the school or at the school district office. You can also contact our office at 1-866-297-2597 or visit our Get Help page to contact us through our online intake system.”  

Kinship caregivers can enroll their child at the office of the local school. When a child is enrolled in a school district, they are usually placed in the school closest to where they live. 

  • How to find your local school district: School Districts, Charter Schools, Tribal Schools and Education Support Districts (ESDs). Includes links to each district or school’s website.
  • How to request information from a previous school: Contact the school office at the child’s last school. If you don’t know the school’s name, try an online search such as “high schools in (Town Name, State)”. Schools usually have their own websites and contact information.

What is Early Intervention?

Early Intervention is a system of services for infants and toddlers (birth to age 3) that have developmental delays, risk of developmental delays, or diagnosed conditions. Services and supports may include speech, physical or occupational therapy, hearing assistance, nursing care, and vision care. The services are provided in the home or in the community.
Every state is required to offer these services under Part C of the Individuals with Disabilities Education Act (IDEA Part C). Services are either free, low-cost, or billable to some insurances.

Families are assigned a Family Resource Coordinator (FRC) and an Individualized Family Service Plan (IFSP) is created by the FRC and the parents (kinship caregiver) for services to support the child’s development and activities for the family to do with the child at home.

When a child reaches age three, the child can transition to special education if needed with a new evaluation. Kinship caregivers may want to start with PAVE: Early Intervention: How to Access Services for Children Birth to 3 in Washington

What is Special Education?

“Special education is instruction that is specially designed to meet the unique needs of a child with a disability. This means education that is individually developed to address a specific child’s needs that result from his or her disability. Since each child is unique, it is difficult to give an overall example of special education. It is individualized for each child.

Some students may be working at the pre-kindergarten grade level, others at the first, second, or third grade level. There may be students whose special education focuses primarily on speech and language development, cognitive development, or needs related to a physical or learning disability”. -Center for Parent Information and Resources

A child getting special education has an Individualized Education Program (IEP) created for them by an IEP team that includes

  • Parents or Guardians (including kinship caregivers)
  • Student (when appropriate)
  • Special Education Teacher
  • General Education Teacher
  • School Representative, Administrator
  • Specialist or service providers
  • Additional Individuals (a parent advocate or friend)

-PAVE, Who’s Who on the IEP Team?

What is a 504 Plan?

“A student with a disability is protected by multiple federal laws. One of these laws is the Rehabilitation Act of 1973. This law is enforced by the U.S. Department of Education’s Office for Civil Rights. Section 504 is part of the Rehabilitation Act and it helps protect students from being treated unfairly because of their disability.”

“The right to a Free Appropriate Public Education (FAPE) is protected by Section 504 and the Individuals with Disabilities Education Act (IDEA). The most common way schools protect Section 504 FAPE rights is through accommodations. A student might have specifically designed help to accomplish their schoolwork, manage their emotions, use school equipment, or something else. The sky is the limit, and Section 504 is intentionally broad to capture a huge range of possible disability conditions that require vastly different types and levels of support.”

PAVE, Section 504: A Plan for Equity, Access and Accommodations

A document, called a Section 504 Plan or just 504 plan, is developed by a team at the child’s school, and includes the child’s parents (kinship caregiver), the 504 coordinator, teachers, and other appropriate staff. The plan is shared with the child’s teacher and any other appropriate staff and is reviewed and updated by the team regularly and as needed.

What to do if the newly arrived child or children had special education, had a 504 plan or received Early Intervention, and they are now in a new school district, town, or state:

Early Intervention:

If the child used to live in a different state, contact Washington’s Early Support for Infants and Toddlers (ESIT) Program. It’s managed by the Department of Children, Youth and Families (DCYF). A new Family Resource Coordinator will be assigned.

You can tell them where the child used to live. If you do not have a copy of the Individualized Family Service Plan (IFSP) and if the FRC is unable to get it from the child’s previous state, the FRC may recommend a new evaluation.

If the child was already living in WA State, contact the ESIT program to let them know the child’s new address and family situation so an FRC can help you continue the child’s plan.

Special Education:

Students who get special education have an Individualized Education Program (IEP). IEPs are documents that outline instruction, services, goals and supports for students in grades Kindergarten through graduation. Parents, including kinship caregivers, are essential in helping a school create an IEP and review and update it every year or as needed.

IEPs and Free Appropriate Education (FAPE) in the Least Restrictive Environment (LRE) are required by federal law, the Individuals with Disability Education Act (IDEA).

  • When a child changes schools inside a school district, they keep the same IEP.
  • If a child moves to a new district from inside or outside Washington State, there’s a process to get comparable (similar) instruction and services.

The new school must provide comparable (similar) services immediately and hold an IEP team meeting within 30 days to decide whether to use the existing IEP or develop a new one. If the IEP team (including parents/kinship caregivers) decide a new IEP is needed, the school must keep providing comparable services until the new IEP is ready to use.

The school must get permission from the parents (kinship caregiver) to have a new evaluation done for a new IEP.

If the kinship caregiver doesn’t have a copy of the child’s IEP, they can contact the child’s previous school and ask for one copy to be sent to the new school, and one copy to the kinship caregiver. Knowing what’s in the child’s IEP, and keeping records is important to make sure the child is getting the services and supports they need.
Another way is for the new school to contact the previous school to get the IEP. In that case, ask the new school to make a copy and send it to you as early as possible before the first IEP team meeting.

To get help with problems with this process, contact PAVE through PAVE’s Support Form.

504 Plans: 

If a child is going to a new school in the same district, the new school will use the current 504 Plan.

If a child is moving from another school district or another state, the child still has a right under federal law for the accommodations, but the current plan isn’t transferred. This is because putting 504 Plans into action may be slightly different from state to state.

  • Parents (kinship caregivers) must provide documentation (the same type as required by the current 504 Plan) and advocate for current accommodations to continue (or be improved or added to).
  • Schools are required to provide comparable (similar) services and accommodations until a new plan is approved, but they will need the current 504 Plan to make that happen.

If the kinship caregiver has a copy of the 504 Plan, and the documents used to create it (such as medical records and diagnosis from a doctor), they can make copies and deliver them to the new school. Use email to send them if you have it to create a record of what was sent and the date.

If the kinship caregiver doesn’t have the 504 Plan document or the documents, use the same process as the IEP. Contact the office at the previous school and request they send the 504 Plan, along with all the child’s school records.

Schools are required to provide school records, but they may need a copy of a court order (if that is how a child was placed in a kinship family), or another type of document to prove they are acting as the child’s parent.

Kinship caregivers can contact these organizations if they are having problems with getting school records:

Finding out if a child needs Early Intervention, Special Education or a 504 plan

Age birth to 3

For children age 3 and up, the school district where the child attends (or will be attending) school is where kinship caregivers can request an evaluation (testing) to see if their child is eligible for Special Education, or possibly a 504 Plan.

A federal law requires all school districts to find, evaluate (test), and if eligible, serve any infant, toddler, or school-aged child who has a known or suspected disability that might impact (interfere with) their learning in school.

If you are not sure how special education would work for your child, you can fill out PAVE’s support form and you’ll hear back from a PAVE team member with first steps and resources to learn more.

Learn More

Camps for Individuals with Disabilities

It’s that time of year! Registration for summer camps usually open January through March. Camp dates tend to fill up fast, so we offer a list of many camps across WA State that serve individuals with disabilities, from pre-K to adult.

Did you know…camps aren’t just for summer! Many of these camps operate during the school year for weekends, after-school, and school vacation dates.  Along with the camps listed below, local YMCA and Boys & Girls Clubs have options that fit into families’ schedules year-round.

Some of the camps listed below were created specifically to serve campers with disabilities or certain medical conditions. Others serve campers with and without disabilities. Both types of camps are likely to ask families for information about their child or other family member to make sure camp staff can support them.

Click on the “plus signs” (+) below to open the list of camps in that category. Many of these camps are in overlapping categories—you won’t miss any! Happy camp hunting!

Ages 1 – 5

Ages 5-18

  • Apex Summer Camps offered by the University of WA Autism Center, Seattle. Children age 6-13, scholarships available.
  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who have experienced a significant loss in their life.
  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Dudley near the White Pass Ski Area on Rt 12– Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by the Eluna Network.
  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Camp Sealth on Vashon Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • My Gym in Happy Valley, Oregon – Summer camps for children ages 3-10 years.
  • Ocean Park Camp – Overnight camp for grade school children and families. (religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

For Young Adults and Adults

  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.

Family Camps

  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families. (please note: this camp is religiously affiliated)
  • Camp Korey in Mount Vernon – Free overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious illness/terminally ill or children with a developmental disability
  • Camp Sealth on Vashon Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Ocean Park Camp – Overnight camp for grade-school children and families. (please note: this camp is religiously affiliated)
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (please note: this camp is religiously affiliated)

For Intellectual and Developmental Disabilities

  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Apex Summer Camps in Seattle offered by the University of WA Autism Center. Children age 6-13, scholarships available.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Beausite Northwest near Port Townsend – Summer camps for individuals 10 and older who have IDD or physical disabilities.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Dudley near the White Pass Ski Area – Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Evolutions Preschool Summer Camps in Camas – Day camps for ages 3-6 years.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Lions Camp Horizon in Blaine – Camps for individuals age 12 and over with disabilities.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • My Gym in Happy Valley, Oregon – Summer camps for children ages 3-10 years.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (please note: this camp is religiously affiliated)
  • Ocean Park Camp – Overnight camp for grade-school children and families. (please note: this camp is religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

For Physical Disabilities or Conditions

  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Korey in Mount Vernon – Provides overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions for free.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious/terminally ill or developmentally disabled child(ren).
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.

For Behavioral Health Diagnosis

  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who’ve experienced a significant loss in their life.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by eluna.
  • Camp Mariposa in Everett and Vancouver – Free day and overnight camp for youth affected by the substance use of a family member, run by eluna.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • CSTOCK Community Theatre Camp in Silverdale – Day camp for ages 4-18.
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.

Seattle/Tacoma Area

  • Aspiring Youth in Seattle – Day camps for children aged 5-18, with a focus on helping kids with neurodiversity find new friends.
  • Apex Summer Camps offered by the University of WA Autism Center. Children age 6-13, scholarships available.
  • Black Diamond Camp in Auburn – Summer day camps for children aged 5–12, overnight camp for middle and high school students. (please note: this camp is religiously affiliated)
  • Camp Agape Northwest in Gig Harbor – Free overnight camp for kids with cancer and their families.
  • Camp Discovery in Auburn – Free weeklong overnight camp for children with epilepsy.
  • Camp Erin in Everett, Seattle, Tacoma, and Lewiston – Free day and overnight camps for youth and families grieving the death of a significant person in their lives, run by eluna.
  • Camp Leo in Auburn – Overnight camp for grades 3-12 who have Type 1 Diabetes.
  • Camp Mariposa in Everett and Vancouver – Free day and overnight camp for youth affected by the substance use of a family member, run by eluna.
  • Camp Sealth on Vashion Island – Overnight and Day camps for school-aged kids, along with family camp, run by Camp Fire Central Puget Sound.
  • Camp Stand By Me in Vaughn – Overnight camp for those with disabilities aged 7 and up, run by Easterseals of Washington.
  • Coyote Central in Seattle – Day camp/creative courses for 10–15-year-olds. 
  • Four Star Farm in Graham – Day camp with horse training and riding.
  • Little Bit Summer Camp in Redmond – Day horse camp for ages 5-25.
  • New Horizons Camp on Vashon Island – Overnight camp for adults with disabilities, run by Camp Burton. (please note: this camp is religiously affiliated)
  • Outdoors for All in Bellevue – Has recreation programs and camps for those with and without disabilities, aged 7 and up.
  • School of Acrobatics and New Circus Arts in Seattle – Acrobatics classes and camps, including instruction for those with physical disabilities and the neurodiverse.
  • Seattle Playgarden – Summer day camp for ages 3.5-21 years old with and without disabilities.
  • Trace Behavior Support Camp (formerly Community Care) in Seattle – Therapeutic day camp for school-aged children that have behavioral health issues.
  • Warm Beach Camp in Greenwood – Runs horsemanship day camp and family overnight camp. (religiously affiliated)

Northern Puget Sound

  • Camp Killoqua in Stanwood – Day and Overnight camps for children grades 1-12, run by Camp Fire Snohomish County.
  • Camp Korey in Mount Vernon – Provides overnight summer camps and family camps for children ages 5 to 17 who have specific medical conditions for free.
  • Camp Promise in Mt. Vernon – Free overnight camp ages 6 years or older who have neuromuscular disorders.
  • Kiwanis Camp Casey in Blaine – Free day and overnight camp for those aged 6-17 that are mildly to severely physically challenged.
  • Camp Sun Sparrow in Greenwood – Day camp for individuals with IDD aged 15 and older, run by Warm Beach Camp. (please note: this camp is religiously affiliated)
  • Empowering Strides in Snohomish – Equine therapy day camp for kids aged 5-12 who are neurodivergent or have behavioral health problems.
  • Hopeful Hands in Lynwood – Day Camps for ages 13-19 youth with neurodivergency.
  • Miracles and Memories Academy in Monroe – Has day camps for adults with intellectual and developmental disabilities.
  • Premier Northwest Kids in Snohomish – Preschool classes and day camp for ages 3-10.

Coastal Washington

Eastern Washington

  • Camp Amanda in Walla Walla – Free weekend camp for children aged 8-14 who’ve experienced a significant loss in their life.
  • Camp Dart-Lo in Spokane – Day camp for Pre-K through 8th grade, run by Camp Fire Inland Northwest.
  • Camp Lutherhaven at Lake Coeur d’Alene, Idaho – Overnight camp for grade school students. (please note: this camp is religiously affiliated)
  • Camp Sweyolakan on Lake Coeur d’Alene, Idaho – Overnight camp for grade school children and day camp for grades 1-6, run by Camp Fire Inland Northwest.
  • Camp Zanika at Lake Wenatchee – Overnight camp for children in grades 1-12, run by Camp Fire North Central Washington.
  • Champ Camp at Lake Coeur d’Alene, Idaho – Overnight camp for people with special needs, 8 and older with a 1:1 staffing, or all ages if attending with caregiver, run by Lutherhaven Ministries. (please note: this camp is religiously affiliated)
  • Funshine Day Camp in Spokane – Day camp for ages 6 and up for individuals with disabilities, run by the City of Spokane Parks & Recreation Therapeutic Recreation Services.
  • TROT in Kennewick – Adaptive riding day camp for 4 and older.
  • Camp Dudley near the White Pass Ski Area – Overnight camp for children aged 7-15, run by the Yakima YMCA.
  • Camp Prime Time near the White Pass Ski Area – Free overnight camp for families with a serious/terminally ill or developmentally disabled child(ren).
  • Camp Spark in Vancouver – Sports camp for aged 8-21 athletes who are blind or visually impaired.
  • Evolutions Preschool Summer Camps in Camas – Day camps for ages 3-6 years.
  • Mt. Hood Kiwanis Camp – Overnight camp for adults that have developmental disabilities.
  • My Gym in Happy Valley, Oregon –  Summer camps for children ages 3-10 years.
  • Vancouver Elite Gymnastics Academy – Gymnastic and dance day camp for children 3-16. 

Kinship Caregiving

Relatives raising the child(ren) of a family member (Kinship Families)

Kinship families are families in which children live with and are being raised by grandparents, other extended family members, or other adults with whom they have a close family-like relationship such as close family friends. Many kinship caregivers don’t necessarily think of themselves that way–it’s natural to step in and raise children when the parents can’t. Even though most of the challenges that come with raising children are the same for a kinship family, there is an important difference. Kinship caregivers do not have automatic legal rights and responsibilities for the children. Raising children when they are not the child’s parent was not necessarily planned or expected. It’s often related to a family crisis, and the child welfare system is not always involved.

Kinship caregivers can often use help with all of the practical issues surrounding a suddenly larger family: large enough housing, paying for the extra food, ensuring medical care, and registering children at a different school. Legal issues may come up–powers of attorney to get things done, custody, guardianship of the children, parental rights and visitation.

There is help available! Kinship caregivers can get help with:

  • Health insurance and health care
  • Financial assistance (including food)
  • Other public benefits
  • Legal assistance
  • Tax credits
  • Schooling–especially if the child or children are now in a new school district
  • Support groups where other kinship caregivers share concerns, experiences, and ideas

WA State’s Department of Social and Health Services (DSHS) supports for Kinship Families, including Tribal Families.

MORE HELP:

If the child or children have a disability or special health care need:

PAVE Family Voices of Washington Get Help (works for both programs)

If the child may be experiencing a developmental delay, or you have concerns about that:

“Developmental Screening (Birth to Three and Medically needed developmental screening)”

If the child’s special education needs are not being met: Get Help

If you need a break (respite): Lifespan Respite WA

For Care Partners/Caregivers of Individuals Living with Parkinson’s Disease

At Lifespan Respite WA, we focus on caregivers. Our team gathered resources specifically for caregivers from the organizations listed below, to support you in your life with your care partner.

American Academy of Neurology’s Brain&Life website has a quick search function for all types of neurological diseases including Parkinson’s, as well as clinical guidelines (best practices) and information on clinical trials and clinical research.

Davis Phinney Foundation for Parkinson’s

1-866-358-0285; contact@dpf.org

“Dedicated to helping people with Parkinson’s disease live well today. Provides information, inspiration, tools, resources, and opportunities to people living with Parkinson’s Disease and care partners to better manage their disease and promote increased engagement in health.”

Among a list of more traditional resources, the Davis Phinney Foundation focuses in on person-to-person support for those living with Parkinson’s and their care partners:

  • Parkinson’s Ambassadors: located in 35 states and Canada (one on one support)
  • “We have more than 70 Ambassadors located in 35 states and Canada. Ambassadors are available to connect with individuals, families, and groups to help answer questions about living well with Parkinson’s and connect you with resources and relationships to provide support.”
  • Living with Parkinson’s and Care Partner Meetups on Zoom (comes with how-tos for Zoom and access to recordings)
  • “Our monthly Living with Parkinson’s Meetup brings together all people diagnosed with Parkinson’s—young, old, early, late—for open, honest, real, and always fun conversations about everything you’ve ever wanted to know about Parkinson’s but were afraid to ask.”

La Davis Phinney Fundación en Español

Usted puede Vivir Bien Hoy si ha sido diagnosticado con Parkinson y nuestra misión es acompañarlo y apoyarlo durante este camino.

A continuación, encontrará una serie de enlaces a distintos espacios y formularios mediante los cuales queremos establecer un puente de comunicación e información con nuestra comunidad de Parkinson de habla hispana.

Y no olvide que siempre puede contactarnos enviando un correo electrónico a la siguiente dirección: cmartinez@dpf.org.

Sitio Web : En español

Lifespan Respite WA’s website can link care partners to the Washington Family Caregiver Learning Portal (from TRUALTA), which has free training for the type of care individuals with Parkinson’s may need at home. Once in the Portal, type “Parkinsons” in the search bar.

The Michael J. Fox Foundation for Parkinson’s Research

This research-focused organization does have good advice for caregivers, found under the topic “Care Partners”.   The “Support Group” page has some specifics for starting a support group. If you don’t find one that works for you, there is this list:

Parkinson’s Buddy Network is an online community of people impacted by Parkinson’s designed to help you make meaningful connections, engage in important dialogue, find useful resources and build long-lasting relationships.

NeuroTalk has a robust Parkinson’s disease community.

Caring.com hosts a Parkinson’s support group.

HealthUnlocked has Parkinson’s community pages.

Smart Patients Parkinson’s Disease Community offers self-care tips.

PatientsLikeMe has a Parkinson’s forum.

    MyParkinsonsTeam. The website says “MyParkinsonsTeam is a free social network that makes it easy for you to:

    • get the emotional support you need from others like you, and
    • gain practical advice and insights on managing treatment or therapies for Parkinson’s disease”

    Note that this site is run by a for-profit organization, so you may wish to carefully read the “About” section.

    Northwest Parkinson’s Foundation

    Toll-Free: 1-877-980-7500
    Seattle area: 206-748-9481
    Email: info@nwpf.org Website: https://nwpf.org

    “Our Mission is to transform the way people live with Parkinson’s through awareness, education, advocacy, and care.”  They serve in Washington, Alaska, Montana, and Idaho.

    Social Services: “Northwest Parkinson’s aims to fill in the gaps between neurology visits by providing support for People with Parkinson’s, Caregivers, Family members, and Providers in Washington, Alaska, Montana, and Idaho. Social Work is available to provide PD related education and resources or simply lend a listening ear. We offer:

    • 1 to 1 phone consultations to navigate life with Parkinson’s and caring for someone with Parkinson’s. During these consultations we can go over a range of resources from Support Groups, in-home care, placement advisory referrals, Neurology/MDS referrals, financial assistance resources, online and local movement/fitness programs, among others.
    • Support Groups. NWPF runs a few different support groups for Carepartners, Adult Children, and Lay Facilitators of PD Support Groups. We also keep a listing of Support Groups in each of the 4 states we service.”
    • Many other supports and services

    Parkinson’s Foundation   Parkinson’s Foundation en Espanol

    “Parkinson’s Foundation focuses on research and access to healthcare for individuals living with Parkinson’s Disease. The Pacific Northwest Chapter serves residents of Alaska, Idaho, Montana, Oregon and Washington with local resources”

    Support for Care Partners includes among other resources

    For programs, support groups and specialist referrals, call the Parkinson Foundation’s Helpline at 1-800-473-4636, or by email: Helpline@Parkinson.org.

    Stanford Medicine has the Caregiver Corner with fact sheets, blog, articles, videos, and podcasts.

    Lifespan Respite WA for Professionals: Social Services and Medical

    What Lifespan Respite WA does:

    We offer interpretation if arranged in advance for almost any language. Email us in a preferred language to set this up.

    Contact us:     Email: getrespite@wapave.org; Phone:  253-442-3214

    Essential Information

    • Caregivers must not be receiving respite care funded through any other program or organization, whether government-funded or private sector. Family helping out by paying for respite care doesn’t count as “paid respite”. (On the other hand, families who are approved for publicly funded programs, but who won’t get services for at least 30 days or on a no-paid-services list are eligible for a Lifespan voucher).
    • We do not ask for any proof of condition or diagnosis, any proof of income, or any documentation. Everything is self-reported.
    • We are required to get a statement (emailed, texted) from a caregiver if the care recipient is on Medicaid, that no paid respite is being received from any program or agency. Financial help from family members is ok.
    • This program is for PLANNED, not crisis or emergency respite. No exceptions.
    • Short-term!! Must use within 4 months, unless for summer camps or recreation. In that case, proof of registration is required.
    • Extensions may be approved under compelling circumstances, on a case-by-case basis.
    • Usual award amount is $1,000.00 per household.
    • ONE voucher per household—if there are multiple care recipients, voucher is evenly split and can’t be transferred from one family member to another.
    • There is a wait list since there are always more applications than funds. We cannot tell exactly when an award will be made. According to our contract with the state, vouchers are given based on the date of application, but also on an equitable distribution of vouchers across WA State, taking into account the population density and numbers of applications from different regions.
    • Applicants get an email notice when we get their application. We will be sending interim notices to let applicants know their application is still on the list
    • Caregivers can reapply in one year from the date of their most recent application.
    • Caregivers have the responsibility to find out the hourly or session rate charged by the program or agency, and to keep track of hours or sessions so as not to run over the voucher amount. Caregivers are financially responsible for any charges over the amount of the voucher.

    Important for family caregivers to know

    • The biggest barrier to voucher use, for many caregivers, appears to be contacting programs or agencies and persisting until they get a response back. This is why we recommend checking providers out even before a voucher is awarded. Check our “List of Providers” page to find out if the type of respite they have in mind is available in their area.
    • There is no guarantee that any program or agency has availability even when on our Providers list.
    • We have providers of some type in each county in WA; but some counties do not have much provider choice. We are constantly working on that!
    • Voucher applicants may suggest a provider if there is no availability among the registered providers, or if they have requirements registered providers cannot meet. The team will reach out and see if the suggested provider is willing to take the voucher funding.
    • We can’t pay a family member OR ANY OTHER INDIVIDUAL to be a caregiver. The only respite we will pay for is from one of our Registered providers.

    Respite Offers a Break for Caregivers and Those They Support

    Respite offers a short-term break for caregivers and those they support. This article provides information and resources to get started seeking respite services. Resources and links include sources of respite in WA State.

    A Brief Overview

    • Respite offers a short-term break for caregivers and those they support. This article provides information and resources to get started seeking respite services. Resources and links include sources of respite in WA State.
    • Pathways to Respite, an online booklet published by several Washington agencies, provides further guidance. The guidebook defines caregiver stress and explains why breaks are critical to everyone’s well-being.
    • The ARCH National Respite Network and Resource Center provides a free, downloadable 17-page guidebook, ABCs of Respite: A Consumer Guide for Family Caregivers. ARCH stands for Access to Respite Care and Help.
    • Lifespan Respite Washington, a program of PAVE, offers vouchers to help fund respite care.
    • Veteran’s families may qualify for respite through the Program of Comprehensive Assistance for Family Caregivers (PCAFC), operated by the United States Department of Veterans Affairs.

    Introduction

    “Putting the needs of everyone else before your own may solve an immediate stress; however, in the long-term, it can lead to increased anxiety, frustration, overwhelming feelings, resentment, depression, burnout, and even illness. Whether you think of yourself as a caregiver or not, these are all signs of caregiver stress.”

    Modern families come in many styles. Primary caregivers may be parents or spouses or adult children, and they might be other relatives (kinship providers), friends, or neighbors. “Care recipient” is a term for anyone who requires assistance for daily living. “Caregiver” refers to anyone who provides regular assistance to a child or adult with chronic or disabling conditions.

    Time apart can boost well-being for all: While caregivers temporarily shift their focus to self-care, care recipients have time to meet new people and explore new interests.

    Finding an appropriate respite service and organizing payment can feel challenging. This article offers guidance to simplify the steps.

    Check standards and safety measures

    When researching a respite agency, caregivers can check whether the agency meets standards and follows appropriate safety measures.

    Lifespan Respite Washington provides a checklist with questions to think about. Here are a few examples:

    • How are the workers chosen and trained?
    • Can the respite worker give medicine or help with medical tasks?
    • If the provider will be driving the care recipient, do they have a valid driver’s license? Is the company insured to have their workers do that?
    • How are emergencies and problems handled?

    Registered, publicly funded respite providers need to meet certain standards and qualifications, including background checks and training. The public agency that pays for the service is responsible to track and share information about those procedures and quality measures. If respite is paid for by private medical or long-term care insurance, providers must meet the insurance company’s standards. Caregivers can ask an insurance company representative to explain the standards and how the insurance company makes sure the standards are followed.

    Another helpful resource: the ARCH National Respite Network and Resource Center provides a free, downloadable 17-page guidebook, ABCs of Respite: A Consumer Guide for Family Caregivers. ARCH stands for Access to Respite Care and Help.

    What respite services would be most helpful?

    Respite includes a broad range of services. Some organizations offer short-term, overnight stays in their facilities and some offer daytime services. Some respite services are delivered in the home, like:

    • personal hygiene care
    • meal preparation
    • light housekeeping
    • companionship, activities, or supervision

    Community Living Connections (CLC) has an online tool to help caregivers figure out what type of help they may want or need.

    Washington’s Pathways to Respite booklet includes “fill-in-the-blanks” tools to help define needs, like these examples:

    “I would like to take a break, but I am concerned that___________” and “If I had some time to myself, I would _____________.”

    Pathways to Respite was developed by Informing Families, a resource of the Washington State Developmental Disabilities Council, in partnership with the Washington State Developmental Disabilities Administration, Aging & Long-Term Support Administration, and PAVE, which administers Lifespan Respite WA.

    Ways to pay for respite and find respite providers

    If a family will pay directly for respite services, they can find respite providers online. Here are some ideas to start a search:

    • “Adult Day Services Washington State”
    • “After-school programs children with special health care needs Washington State”
    • “In-home care agencies near me”

    Another way to find a respite provider is to connect to a website managed by SEIU 775:  The Service Employees International Union is for independent service providers who have a collective bargaining agreement with Washington state’s Department of Social and Health Services (DSHS). This is one way to find an independent respite worker (usually for in-home care) that meets WA State qualifications for the work.

    Care.com is a private, online service connecting respite or personal care workers with potential care recipients and their families. Families are on their own to follow up on an individual worker’s qualifications, references, and background, although some listings will show someone has passed a background check.

    If a care recipient is eligible for respite through private medical insurance, the insurance company will list approved providers or caregivers may call their insurance company representative.

    Publicly funded respite programs also have lists of registered providers. Family caregivers who have respite funding through Medicaid or the Developmental Disabilities Community Services (DDCS) can use CarinaCare.com, an online tool to connect individuals with providers. A Who’s Who page describes the provider’s qualifications.

    Lifespan Respite WA vouchers can help fund respite services

    Lifespan Respite WA provides information about how to apply for a voucher. Vouchers are “mini-grants” for unpaid caregivers supporting a family member, friend or neighbor who has a special need or condition. The vouchers, up to $1,000 per qualifying household, can be used with any of the registered Lifespan Respite Providers listed on their website.

    To qualify, the caregiver or care recipient can not be enrolled in a Medicaid respite or personal care program through DDCS (formerly DDA). (Exceptions are made for people on a waiting list and not scheduled to get respite services within 30 days of applying for a Lifespan voucher.) Additionally, a caregiver must:

    • Not be paid to care for the care recipient
    • Give 40 or more hours a week of care
    • Not get respite from any other program
    • Live in Washington State
    • Can’t afford to pay privately for respite care

    Who qualifies for free or low-cost respite care?

    In Washington State, eligibility for free or low-cost respite services may depend on a person’s circumstances or the category of disability.

    • Seniors and Adults with Disabilities
      • Seniors 65 and older who meet functional and financial eligibility can get a variety of services through Department of Social and Health Services Home and Community Services Administration (HCSA).
      • Unpaid caregivers of adults 55 and older who meet functional and financial eligibility can get respite care and other needed support services like caregiver education, support groups, housework and errands and other services.
      • The easiest way to learn about services and eligibility is to contact the county or regional Area Agency on Aging, which administers many of HCSA’s services. They are also listed at Washington’s Community Living Connections/waclc.org.
    • People with Developmental Disabilities (All Ages) and Children with Disabilities
      • Children and adults with developmental disabilities who meet eligibility criteria for Developmental Disabilities Community Services (DDCS) might get respite, personal care, assistive technology, community engagement support, and other services provided through Home and Community-Based Services and Community First Choice (CFC).
      • Children with disabilities who are not DDA eligible may still get CFC through DDA.

    How to apply:

    Foster care respite

    Respite care is available for foster parents licensed by the Division of Licensed Resources (DLR), a Tribal agency, or a Child Placing Agency (CPA). Unlicensed relative caregivers or those determined to be “suitable person placements” also can get respite, as can caregivers assigned by the Department of Children, Youth, and Families (DCYF) or a Washington Tribe. 

    Child Specific Respite (CSR) is linked directly to the medical, behavioral, or special needs of an individual child. CSR authorizes respite relief to families providing care to a child placed by DCYF on a case-by-case basis, consistent with the written service plan for the child.

    Veterans and Military Family Caregivers

    Veteran’s families may qualify for respite through the Program of Comprehensive Assistance for Family Caregivers (PCAFC), operated by the United States Department of Veterans Affairs. PCAFC offers up to 30 hours of respite: Program options, eligibility and the application process are described in a downloadable booklet published Oct. 1, 2020.

    Active-duty military and Activated Reserve or National Guard family caregivers may be eligible for respite care through TRICARE, the military healthcare system. Here are resources for military family caregivers:

    • Respite care for primary caregivers of service members injured in the line of duty can be found on the TRICARE website.
    • Extended Care Health Option (ECHO) can be a respite resource for caregivers of non-military family members.
    • Some installations have respite funding available when the care recipient is enrolled in the Exceptional Family Member Program.
    • Coast Guard family caregivers have the Special Needs Program which may offer respite or funding for respite:
    • Coast Guard Mutual Assistance has Respite Care Grants available for eligible Coast Guard clients who have responsibility 24 hours per day to care for an ill or disabled family member who lives in the same household.

    Keeping Kids Busy Through Summer: Summer Camp Alternatives

    Summer camp is an excellent way for children to spend the long summer days. However, camps are often filled quickly, and many are out of the financial reach of families. Here are some alternatives to those summer camps to entertain children and give caregivers some much needed respite.

    A Brief Overview

    • There are many inexpensive ways to entertain children over the summer
    • Check with local parks and recreation for activities, including those for children and youth with disabilities
    • Washington State Parks are wonderful for exploring as a family
    • Consult with family organizations, schools, and educators for ideas and information on programs

    Full Article

    Local parks and recreation departments often boost their options for children over the summer. These can include sports, preschool classes, and outdoor activities. Some of the parks and rec departments, especially in larger communities, have adaptive or accessible classes, for those with disabilities and/or sensory issues. Boys and Girls Clubs have activities, classes, and day camp for a small fee. Their Find a Club interactive map will let you locate the nearest club. The YMCA also can offer day camp options, along with their usual sports and recreation options. 4H, the nation’s largest youth development organization, has many opportunities for children and youth to engage in hands-on learning, skill building, and community interaction. Various branches of 4H offer Science, Technology, Engineering & Math (STEM) activities, civic engagement, animal science, environmental science, performance arts, nutrition and health, and many, many more activities are available through your local camps.

    Washington State Parks provide for a wide range of outdoor activities this summer and even have special events that can be viewed on their calendar. For children four and up, their Junior Ranger Program has activities to print out and ideas for indoor and outdoor fun. For those with physical limitations, an interactive ADA map of park facilities shows the wheelchair accessible options throughout the State Park system.

    Libraries often have surprisingly varied options, including reading programs, arts and crafts, educational classes, and movie nights. Many libraries now have take-home kits for creative activities to do with the whole family. Summer reading lists are available both on library websites and in-person.

    Movie theaters sometimes offer sensory-friendly film viewing at certain scheduled times, check with the theater. Good for those hot afternoons!

    Parent groups and family organizations are often up to date on the latest summer activity offerings around the community. The Arc of Washington and Parent to Parent are both focused on families with children with disabilities or special health care needs, are aware of many opportunities, and may even offer some events for families and kids.

    Some school districts have enrichment activities over the summer beyond the extended school year (a.k.a. summer school) options. Local school district websites will have full listings for anything they may offer. Often schools and school districts also have recommendations for summer activities and information on summer events. Teachers are a useful resource for summer ideas and information, as they have heard a lot about what their students are doing this summer, so a quick chat with them may be in order.

    Several websites focus on community events and classes that children and youth can be involved in over the summer. The most prominent is Macaroni KID, but others include Parent Map, and Family Day Out. The local Chamber of Commerce and local newspapers also will post some event highlights and may list on their community calendars. Summer is also the time for County Fairs and other events, many of which take place in August.

    Lifespan Respite WA (a program of PAVE) has a list of registered providers that is accessible to everyone, where it is possible to find recreation and respite options by county, age served, disabilities served, and respite type. The options listed under Recreation on the “Respite Type” menu has an array of interesting options that may have flown under a family’s radar, such as equine therapy, music classes, and sensory-friendly playgrounds. Check out their page “Creative Options for a Respite Break” for more low-cost and free ideas for summer (and year-round) activities. Visit their Voucher Program page to find out if you qualify for a small grant for short respite breaks!

    Relatives Raising Children Face Unique Challenges

    Imagine a knock on the front door at night. Outside is a police officer, bringing a child to the safe-haven of a grandparent’s home. A grandparent might experience fear and confusion, trying to reconcile what has happened in the family and how to support the child. This is how a journey toward kinship care can begin.

    May is Kinship Awareness Month, an opportunity to acknowledge relatives other than parents raising children. Nearly 50,000 family members in Washington are kinship caregivers. Many of the children in their care have experienced trauma and need special education or uniquely designed physical- or mental-health services.

    Relatives who provide kinship care can qualify for state support. The Washington State Department of Social and Health Services (DSHS) provides a resource guide about kinship care that includes information about benefits and services, health care, legal issues and more. DSHS manages the kinship program as part of its Aging and Long-Term Support Administration (ALTSA).

    Reasons that relatives other than parents raise children vary. Some family members are granted custody by courts involved in the child welfare system. In other circumstances, law enforcement places children with relatives after finding parents unfit. Parents may have died, or a relative may have intervened because of issues related to addiction or abuse. Some kinship caregivers are meeting a grandchild, niece, or nephew for the first time when that child needs a new home.

    A child might arrive without any possessions. The financial cost and life disruption can significantly impact the relative providing kinship care. In Washington, the Kinship Navigator program can help. This program was adopted by the state in 2003.  

    A Kinship Navigator can direct family caregivers to a variety of community resources related to healthcare, finances, legal services, support groups, training, child care and emergency funds. Kinship Navigators also can explain how to apply for federal and state benefits. The Kinship Navigator helps families establish or maintain greater self-sufficiency and long-term stability, often with a goal to keep children out of foster care.

    A navigator can help family caregivers get involved with support groups and learn to balance the needs of the child with a potentially complicated relationship with the child’s parents. Daycare options can be located, and children might gain access to recreational and social activities to help them find belonging in a new life circumstance.

    In spring 2019, Governor Jay Inslee signed into law Senate Bill 5641 to create a statewide kinship care legal aid coordinator. The state budget was expanded to include $500,000 for growth of the Kinship Care Support Program and $468,000 to fund Tribal Navigators for Native American families. One of the bill’s supporters was Rep. Eric Pettigrew, who in 2002 helped create a statewide Kinship Care Oversight Committee that led to development of the state’s kinship programming.

    The Seattle Times published an article Dec. 28, 2018, about kinship care and reimbursement rates in comparison to foster care. According to the Times, about 43,000 relatives other than parents are raising children in Washington State. More than 90 percent of those caregivers are grandparents. The article includes data that most families choose not to become legal foster parents because of state scrutiny over the welfare system. Informal kinship-care arrangements are four times more common than formal foster care.

    Generations United, a Washington, D.C.-based nonprofit, collects data about government costs and savings related to kinship care. The agency coordinates projects to strengthen intergenerational connections and offers ways for families to advocate for system improvements to benefit children, youth and older adults.

    The Military Parent Technical Assistance Center, The Branch, provides specific guidance about benefits and other issues that impact short- and long-term kinship caregivers in military families.