Tag: disability

Creating Comfortable Holiday Spaces

Posted on by Nicol Walsh

Navigating social interactions can be particularly challenging for individuals with disabilities, especially during the holiday season when gatherings are frequent and often overwhelming. While some people enjoy socializing, they may prefer calm and predictable environments where they can engage in structured activities. Understanding their unique needs and preferences is crucial for creating a supportive and inclusive atmosphere that allows them to participate comfortably and meaningfully.  

A Brief Overview  

  • This is part of a series on the topic of creating joyful holidays for family members, which began in My Family’s Sensory and Adaptive Needs for the Holidays and continues in Sensory-Friendly Holiday Tips  and Giving the Gift of Sensory-Regulation; Supporting a Happy Holiday Season for All.
  • Social interactions can be particularly challenging during the holiday season due to frequent and overwhelming gatherings.  
  • People with disabilities who enjoy socializing may prefer calm, predictable settings.  
  • Structured social activities provide a comfortable way for individuals to engage with others, as they offer clear rules and a shared experience.  
  • Family gatherings can be stressful due to interactions with relatives they don’t see often, leading to feelings of overwhelm.  
  • It’s crucial to respect the boundaries of individuals with disabilities or health care needs, allowing them to make their own choices about social interactions and providing opportunities for breaks to avoid overstimulation.  
  • Understanding and respecting social preferences and boundaries, especially during the holiday season, helps ensure people feel safe, respected, and included.  

Comfort In Calm Familiarity

People with disabilities or special health care needs who enjoy socializing may prefer calm, predictable gatherings. They might like sitting with a friend and playing video games, quietly working on a puzzle together, or playing board games. When faced with a loud, busy family gathering, individuals may withdraw or seek out one person they enjoy chatting with -someone who genuinely respects and understands their accommodation needs, and with whom they can happily spend time with. This person feels safe to them. However, it’s important to recognize that their safe person might need a break too, so having multiple people that they feel safe with can be beneficial.  

Incorporating Structured Activities

For many individuals, having structured social activities like board games or group video games can provide a comfortable way to engage with others. Social rules and nuances can often be confusing, making unstructured mingling feel overwhelming and unmanageable. Structured activities offer a more supportive environment for social interaction with the rules clearly identified and a shared experience to drive conversation. Baking together, wrapping presents, and completing holiday crafts are all shared experiences that have clear instructions and goals. These activities not only make socializing more manageable but also add a festive touch to holiday gatherings.  

Overstimulation With Unfamiliar Relatives

Even meeting with beloved family members can feel strange and stressful. Talking to relatives they don’t see often can be difficult for people as they may feel that they must work out how to talk and act around people that feel unfamiliar. This can be overwhelming since they have to understand and respond to different social cues and expectations that may not be easy or comfortable for them.  

To help ease this stress, consider preparing in advance by discussing who will be at the gathering and what to expect. Shared interests can be a great way to connect with others and make conversations more engaging. Tell or remind your loved one of interests they have in common with relatives they don’t see as often to help start conversations. Socializing can be challenging, so it’s important to be patient and provide support without pressure.  

Supporting Boundaries and Choice

Even with careful planning and maintaining traditions, the holiday season can still be overwhelming. Back-to-back events can be exhausting for anyone, but they can quickly become overstimulating for loved ones with disabilities, health care needs, and/or neurodivergence. Seeing new people or people they only see once a year, having to navigate complex social networks, and often trying to hide their neurodivergent traits to fit in can be very draining. While it is important to encourage your loved one to engage, it’s also critical to respect their boundaries and teach them how to have agency. Agency refers to their ability to make their own choices and decisions about social interactions, ensuring they feel empowered and in control. Allowing them to sit out some holiday parties for the sake of their own wellbeing can be a gift of emotional recharge, ensuring they don’t come out of the season completely exhausted.  

Conclusion

Recognizing and respecting the social preferences and boundaries of individuals with disabilities, health care needs, and/or neurodivergence is essential, especially during the busy holiday season. Providing structured activities and allowing breaks can help them manage the stress and overstimulation that often accompany large gatherings. This can include being aware of touch sensitivities, especially when consent to touch can’t be communicated or understood; preparation is critical. By fostering an environment of understanding and support, we can ensure that individuals feel safe, respected, and included, ultimately enhancing their social experiences and overall well-being. PAVE also has an article that gives more ideas when dealing with touch sensitivities, visit Sensory-Friendly Holiday Tips for more information.

Additional Information:

Online – Coffee & Tea Drop-In with P2P

January 19, 2026 @ 10:00 am – 10:30 am PST

REGISTER Open to parents and caregivers seeking support to navigate the various emotions and life adjustments of raising a child, youth, and adult with a disability. We can help connect families to Pierce County community resources, fosters relationships with other parents and build a support network for parents feeling isolated.

This group supports:

Open Discussions: During the meetings, parents engage in open and honest discussions about various aspects of parenting children with disabilities. Topics might include navigating the healthcare system, accessing educational resources, managing daily routines, promoting social interactions, and self-care for parents.

Shared Experiences: Parents share their personal experiences, challenges, and strategies they have found effective in raising children with disabilities.

Cultural and Language Sensitivity: Efforts are made to ensure that the group is culturally sensitive and inclusive, respecting the diverse backgrounds and needs of all participants. REGISTER

Free

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Online – Coffee & Tea Drop-In with P2P

January 5, 2026 @ 10:00 am – 10:30 am PST

REGISTER Open to parents and caregivers seeking support to navigate the various emotions and life adjustments of raising a child, youth, and adult with a disability. We can help connect families to Pierce County community resources, fosters relationships with other parents and build a support network for parents feeling isolated.

This group supports:

Open Discussions: During the meetings, parents engage in open and honest discussions about various aspects of parenting children with disabilities. Topics might include navigating the healthcare system, accessing educational resources, managing daily routines, promoting social interactions, and self-care for parents.

Shared Experiences: Parents share their personal experiences, challenges, and strategies they have found effective in raising children with disabilities.

Cultural and Language Sensitivity: Efforts are made to ensure that the group is culturally sensitive and inclusive, respecting the diverse backgrounds and needs of all participants. REGISTER

Free

Related Events

Online – P2P Early Years: Birth – 8 Support

January 7, 2026 @ 9:00 am – 9:30 am PST

REGISTER Open to parents and caregivers seeking support to navigate the various emotions and life adjustments of raising a child with a disability. We can help connect families to Pierce County community resources, foster relationships with other parents and build a support network for parents feeling isolated.

This group supports:

Open Discussions: During the meetings, parents engage in open and honest discussions about various aspects of parenting children with disabilities. Topics might include navigating the healthcare system, accessing educational resources, managing daily routines, promoting social interactions, and self-care for parents.

Shared Experiences: Parents share their personal experiences, challenges, and strategies they have found effective in raising children with disabilities.

Cultural and Language Sensitivity: Efforts are made to ensure that the group is culturally sensitive and inclusive, respecting the diverse backgrounds and needs of all participants. REGISTER

Free

Related Events

Online – Building Legacy And Community Knowledge Support Group

January 13, 2026 @ 12:00 pm – 1:00 pm PST

REGISTER This support group provides a safe, validating, and empowering space for parents, caregivers, and families of African descent so they can find understanding, strength, and resources to navigate their unique and often challenging and isolating journey of raising Black/African American child or family member with a disability.

What We Do:

The support group provides information about available resources, services, and programs that cater to the needs of Black and African American families, including therapists, educational materials, and assistive technologies.

This group supports:

Cultural Sensitivity: The support group is familiar with the cultural nuances, historical context, and systemic challenges that Black and African American families may encounter.

Community Building: The group offers a platform for parents to connect with others who share similar experiences, fostering a sense of belonging and camaraderie.

Celebration of Diversity: The support group celebrates the diversity within the Black and African American community and highlights the strengths and contributions of individuals with disabilities, promoting a positive narrative that challenges stereotypes. REGISTER

Free

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My Family’s Sensory and Adaptive Needs for the Holidays

Posted on by Nicol Walsh

The holidays are a fun and festive time that often includes lots of change in schedules, foods, bright lights, loud unexpected sounds, new people, and lots of heightened emotional situations (i.e. seeing Grandparents, presents, seeing Santa). All of this is often overwhelming and even disorienting, especially for those families or individuals who may have some challenges in navigating change or experience a disability or chronic health condition.

A Brief Overview 

  • This article shares ideas, tips, and resources around family-friendly tweaks that can be added to Holiday activities to reduce stress and overwhelm.
  • This is part of a series on the topic of creating joyful holidays for family members, which began in Sensory-Friendly Holiday Tips, and continues in Creating Comfortable Holiday Spaces and Giving the Gift of Sensory-Regulation; Supporting a Happy Holiday Season for All.
  • How to plan for both the needs of your children with unique needs and siblings to encourage shared enjoyment.
  • How to use planning, clear communication, and providing a sense of control to create an inclusive holiday season. 
  • Understanding, supporting, and celebrating the unique needs of your family bring a sense of belonging and acceptance, allowing everyone to enjoy the festive spirit. 

Holidays and Families

People often see family get-togethers, new food, music, trips to see Santa, or new social situations as the joys of holidays, but for families who have children with a disability and those family members who experience life a little differently, these experiences can often be overwhelming and/or exhausting. This doesn’t mean they dislike the event or holidays; it just requires some preparation to make the season inclusive and enjoyable. 

It’s the age-old question… How to create an enjoyable experience for your child(ren) with a disability, their sibling(s), and still not exhaust yourself. Here are some tips that many families have found helpful:

  • Plan short outings and pack snacks (long activities are often overwhelming and tiring for everyone).
  • Bring headphones, fidgets, or handheld activities for kids with sensory needs and high overwhelm (it keeps them entertained while their siblings get to enjoy the holiday fun).
  • Have a person to be able to stay and to do active things with siblings, and someone to be able to take those who need to de-stress and wind down to their own space for quiet fun.
  • What are some home holiday things that mimic large activities (one of the Nutcrackers streamed on TV with popcorn and other treats, siblings dressed up as Santa and elves for pictures, building a pillow snow fort).
  • Sending family information ahead of time on sensory triggers and needs so that they understand if you need to leave early, don’t join in an activity, or ask to join in differently.

There is so much to do and enjoy during this time but navigating it takes thinking ahead and not trying to do everything.

What did you do as a family last year? What worked? What was most enjoyable? If you have older children, talking with your family before school gets out to plan and map out some special things will help with boredom. Give jobs to make the activities successful so that everyone helps make it inclusive, have the siblings talk about what they think will help, and make things comfortable and what will help. This makes it a family holiday that is not just the parents’ responsibility. Remembering to plan parent time off during the Holidays is an important self-care tool!

Travel

If travel is part of the Holiday plans, a more robust planning process is essential. Medications and an emergency medical information sheet, if your loved one has a chronic condition, can be downloaded and added to their luggage to tuck in with the medications. The linked sheet is from the F2F website care notebook page.  Having an extra 3-day emergency medication supply, if possible, is often recommended to give breathing room while doctors are contacted if there are travel delays. To support your loved one, consider planning travel itineraries that include ample downtime, familiar items for comfort, and clear, detailed schedules to reduce anxiety. Additionally, choosing quieter travel times and less crowded destinations can help create a more manageable experience. If there are food requirements, pack food that will make it through security and purchase beverages before getting on the plane. As mentioned above, having noise-canceling headphones, weighted blankets, games, and activities can also help reduce anxiety. 

Sensory Considerations

Sensory sensitivities can be a challenge for anyone whose body or brain is trying to process not only what is going on around them but also their own body’s challenges.  Age, length of time in an activity, anxiety, excitement, and how many systems in the body are impacted, all contribute to an individual’s capacity to handle the multiple layers of sensory input that come with Holiday activities. Knowing your child’s and family’s tolerance for those “layers” and what the stopping points are is essential to creating a holiday environment that minimizes sensory overload. This can include soft lighting, reduce loud noises, and provide sensory-friendly activities.

The holidays are just like any other time of change for your loved one. Take their unique sensory needs into account and what their routines are for medication, rest, and exercise. How the holiday adaptation will fit with your family’s rhythm and how your children usually interact. Taking the time to create buffer zones, adaptive spaces, creative personal activities, with spots of celebration and joy for all your family can take what could be stressful and overwhelming to manageable and memorable. To find other information and ideas on Holiday activities and adaptations, see the additional articles on the links below.

Additional Information

Online – P2P Lunch & Learn

February 19, 2026 @ 12:00 pm – 1:00 pm PST

REGISTER

The P2P Lunch-n-Learn is a dedicated time for parents, caregivers, and providers to access presentations and training from PAVE programs and local Pierce County service providers. Presentation/training topics will vary based on the expressed needs of families in the local community. This group takes place during lunchtime, allowing parents to learn while enjoying a meal in a relaxed and informal setting. Each session might have a specific theme or topic of discussion. Themes could range from handling tantrums and promoting positive behavior to managing screen time, fostering resilience, and supporting learning at home. REGISTER

This group supports:

Trainings: The trainings are designed to be interactive and engaging. Participants have opportunities to ask questions, participate in discussions, and share their own experiences.

Inclusive Environment: The training sessions are inclusive and welcoming, catering to parents with diverse backgrounds and experiences.

Advocacy Support: The group may provide guidance on how to advocate for their child within the school system, healthcare system, or when dealing with government agencies.

Free

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Sensory-Friendly Holiday Tips

Posted on by Nicol Walsh

 The holidays are full of sensory experiences. Flickering candles, holiday music, the aromas of food cooking, the fur on an unfamiliar dog, and the sounds of happy family members all provide sensory input. What is a source of joy for one person may be a cause for overwhelm to another. When being around a loved one with a disability, anyone can help manage these varying sensory experiences by planning ahead.

A Brief Overview 

  • This is part of a series on the topic of creating joyful holidays for family members, which began in My Family’s Sensory and Adaptive Needs for the Holidays, and continues in Creating Comfortable Holiday Spaces and Giving the Gift of Sensory-Regulation; Supporting a Happy Holiday Season for All.
  • The holidays bring various sensory inputs that can be joyful for some but overwhelming for others. 
  • Plan for managing these sensory experiences with loved ones and their primary caregivers. 
  • Identify or create a calm space where the person can decompress and avoid or reduce overwhelm. 
  • Preferences for specific sensory supports should be discussed beforehand and regularly with the loved one. 
  • Recognize and normalize self-stimulatory behaviors, or “stims”, that do not cause physical harm to themselves or others as coping mechanisms for managing sensory input and stress. 
  • Plan for touch-sensitive individuals by setting boundaries, providing scripts for addressing unwanted touch, and having an escape plan. 
  • Foster an inclusive environment by understanding and respecting sensory needs, ensuring clear communication, and seeking feedback from loved ones. 

A Calm Space

Identifying or creating a space where someone is overwhelmed can take a break and still have fun eases the intensity and allows your loved one to decompress. The “veg-out room” usually creates itself, when people go there to relax and watch TV marathons while their stomachs settle after a big meal. By dimming the lights and keeping things quiet in this space, you can quickly and easily build a calming environment for overwhelmed or overstimulated family members to retreat, relax, and rejoin social activities when it is right for them. 

Sensory Systems and Preferences

To reduce the potential for being overwhelmed, your loved one may need to wear earbuds or headphones during social periods or other activities. Similarly, weighted clothing or objects (like blankets or stuffed toys) may provide a sense of comfort and security. Sensory supports are not one-size-fits-all, so talk with your loved one about their preferences. If you notice their preferences related to a specific sensory system, they may be interested in exploring other ways to meet their sensory needs at a later time. PAVE provides a downloadable introducing to The Sensory Systems and How to Meet Their Needs in the article, Giving the Gift of Sensory Regulation, Supporting a Happy Holiday Season for All. Resist the urge to introduce new sensory supports without input from your loved one with a disability and/or health care need, especially during the holidays when there are already many unfamiliar experiences to navigate. 

Normalizing Self-Stimulation 

Many people with disabilities do specific repetitive behaviors to manage sensory input, reduce anxiety, or express themselves. These self-stimulatory behaviors, or “stims”, are ways they’ve learned intuitively to comfort themselves, cope in times of stress, and even express joy.  These “stims” can include rocking, humming, or fiddling with clothes.  Allowing your loved one to discuss and normalize non-harmful stimming helps to create a more inclusive environment. Thought-out responses can turn an angry retort into a teaching moment, such as, “Everyone has their own way of being and this is her way of pushing through her discomfort to spend this time with us. She is doing her best and we’re glad she’s here!” 

Touch Sensitivities

Unexpected touch can be very upsetting, especially those who are touch sensitive. The joy and excitement of the holidays can often make us forget that not everyone is comfortable with physical touch, including hugs. When consent to touch can’t be communicated or understood, preparation is critical. If your loved one is touch sensitive, there are some things you can do ahead of time to accommodate and support their needs: 

  • Ask before you touch someone, even if they were OK with something like a hug in the past.
  • Remind family and friends of what a touch-sensitive loved one tends to find acceptable touch before you gather.
  • Provide scripts for addressing unwanted touch from children, pets, and adults. For instance, telling a child, “I really don’t want you climbing on my lap, but you can sit next to me on the couch and show me your game.” Communicating to a pet owner, “I’m feeling a little overwhelmed by Cooper trying to put her head in my space. Can you keep her behind the dog gate?”, can help mitigate the overwhelming touch before it happens. 
  • Make sure that there are a few supporters around at times to gently redirect unwelcome touch and serve as a shield. These family members and friends can step in as needed to respectfully uphold boundaries, such as sitting between your loved one and a reaching child or holding an animal to keep it from jumping on them. 
  • Prepare an escape plan for an individual, locating a space they feel safe if they are feeling their boundaries are being crossed, where they can decompress and ask for help.

Conclusion

Creating a supportive holiday environment involves understanding and respecting the sensory needs of loved ones. By providing sensory supports and clear communication about boundaries, you can help them navigate the holiday season with greater comfort and ease. Seeking feedback from their primary caregivers and your loved one and giving them a sense of agency in determining their sensory supports ensures their needs are met effectively. With careful planning and empathy, we can ensure that everyone, regardless of their sensory preferences, can enjoy the holidays and create cherished memories together. 

Additional Information:

Online – P2P Military Families Support Group

January 22, 2026 @ 12:00 pm – 12:30 pm PST

REGISTER – Connect with military-connected parents in a welcoming space to share support through deployments, school transitions, IEP/504 plans, medical care, and daily challenges.

What We Do:

The support group provides information about available resources, services, and programs that cater to the needs of military-connected families raising children with disabilities, including educational supports, therapy options, medical services, and assistive technologies.

Inclusive and Welcoming Environment: Safe space where all military-connected parents of children with disabilities feel valued.

Peer Connection and Encouragement: Share stories, offer support, and build relationships with those who understand your journey.

Information Sharing: Tips and resources on deployments, school transitions, IEP/504 plans, medical care, and community supports.

REGISTER

Free

Related Events

Online – P2P Military Families Support Group

January 6, 2026 @ 6:30 pm – 7:00 pm PST

REGISTER – Connect with military-connected parents in a welcoming space to share support through deployments, school transitions, IEP/504 plans, medical care, and daily challenges.

What We Do:

The support group provides information about available resources, services, and programs that cater to the needs of military-connected families raising children with disabilities, including educational supports, therapy options, medical services, and assistive technologies.

Inclusive and Welcoming Environment: Safe space where all military-connected parents of children with disabilities feel valued.

Peer Connection and Encouragement: Share stories, offer support, and build relationships with those who understand your journey.

Information Sharing: Tips and resources on deployments, school transitions, IEP/504 plans, medical care, and community supports.

REGISTER

Free

Related Events

Online – Awesome Autism Parent Support Group

January 12, 2026 @ 10:00 am – 10:30 am PST

REGISTER The Awesome Autism Parent Support Group is a community dedicated to providing a nurturing and empowering environment for parents and caregivers of children with autism. The primary goal is to offer emotional support, share resources, exchange experiences, and promote a sense of unity among parents, individuals, and families raising and child diagnosed with autism spectrum disorder (ASD).

This group supports:

Inclusive and Welcoming Environment: The support group is a safe space where all parents, regardless of their background or experiences, are welcomed and embraced.

Information Sharing: Valuable information about autism, including the latest research, therapeutic interventions, educational strategies, and community resources, is shared within the group.

Guest Speakers and Workshops: The support group might invite guest speakers, such as autism experts, therapists, educators, and medical professionals, to provide insights and guidance on various topics related to autism and parenting. REGISTER

Free

Related Events

Online – Awesome Autism Parent Support Group

January 22, 2026 @ 10:00 am – 10:30 am PST

REGISTER The Awesome Autism Parent Support Group is a community dedicated to providing a nurturing and empowering environment for parents and caregivers of children with autism. The primary goal is to offer emotional support, share resources, exchange experiences, and promote a sense of unity among parents, individuals, and families raising and child diagnosed with autism spectrum disorder (ASD).

This group supports:

Inclusive and Welcoming Environment: The support group is a safe space where all parents, regardless of their background or experiences, are welcomed and embraced.

Information Sharing: Valuable information about autism, including the latest research, therapeutic interventions, educational strategies, and community resources, is shared within the group.

Guest Speakers and Workshops: The support group might invite guest speakers, such as autism experts, therapists, educators, and medical professionals, to provide insights and guidance on various topics related to autism and parenting. REGISTER

Free

Related Events

Online – Building Legacy And Community Knowledge Support Group

January 27, 2026 @ 12:00 pm – 1:00 pm PST

REGISTER This support group provides a safe, validating, and empowering space for parents, caregivers, and families of African descent so they can find understanding, strength, and resources to navigate their unique and often challenging and isolating journey of raising Black/African American child or family member with a disability.

What We Do:

The support group provides information about available resources, services, and programs that cater to the needs of Black and African American families, including therapists, educational materials, and assistive technologies.

This group supports:

Cultural Sensitivity: The support group is familiar with the cultural nuances, historical context, and systemic challenges that Black and African American families may encounter.

Community Building: The group offers a platform for parents to connect with others who share similar experiences, fostering a sense of belonging and camaraderie.

Celebration of Diversity: The support group celebrates the diversity within the Black and African American community and highlights the strengths and contributions of individuals with disabilities, promoting a positive narrative that challenges stereotypes. REGISTER

Free

Related Events

What Medical & Social Service Professionals Need to Know

Posted on by Barb Koumjian

What Lifespan Respite WA does:

  • We offer caregivers a financial grant in the form of a voucher to use for short-term respite care.
  • We offer information and direction to get other possible sources of respite funding and caregiver supports
  • Lifespan Respite WA program page
  • Voucher information
  • List of Lifespan Respite providers

The website is Google-translatable and accessible.

We offer interpretation if arranged in advance for almost any language. Email us in a preferred language to set this up.

Contact us:     Email: getrespite@wapave.org; Phone:  253-442-3214

Essential Information

  • Caregivers must not be receiving respite care funded through any other program or organization, whether government-funded or private sector. Family helping out by paying for respite care doesn’t count as “paid respite”. (On the other hand, families who are approved for publicly funded programs, but who won’t get services for at least 30 days or on a no-paid-services list are eligible for a Lifespan voucher).
  • We do not ask for any proof of condition or diagnosis, any proof of income, or any documentation. Everything is self-reported.
  • We are required to get a statement (emailed, texted) from a caregiver if the care recipient is on Medicaid, that no paid respite is being received from any program or agency. Financial help from family members is ok.
  • This program is for PLANNED, not crisis or emergency respite. No exceptions.
  • Short-term!! Must use within 4 months, unless for summer camps or recreation. In that case, proof of registration is required.
  • Extensions may be approved under compelling circumstances, on a case-by-case basis.
  • Usual award amount is $1,000.00 per household.
  • ONE voucher per household—if there are multiple care recipients, voucher is evenly split and can’t be transferred from one family member to another.
  • There is a wait list since there are always more applications than funds. We cannot tell exactly when an award will be made. According to our contract with the state, vouchers are given based on the date of application, but also on an equitable distribution of vouchers across WA State, taking into account the population density and numbers of applications from different regions.
  • Applicants get an email notice when we get their application. No interim notices are sent until an award is made.
  • Caregivers can reapply in one year from the date of their most recent application.
  • Caregivers have the responsibility to find out the hourly or session rate charged by the program or agency, and to keep track of hours or sessions so as not to run over the voucher amount. Caregivers are financially responsible for any charges over the amount of the voucher.

Important for family caregivers to know

  • The biggest barrier to voucher use, for many caregivers, appears to be contacting programs or agencies and persisting until they get a response back. This is why we recommend checking providers out even before a voucher is awarded. Check our “List of Providers” page to find out if the type of respite they have in mind is available in their area.
  • There is no guarantee that any program or agency has availability even when on our Providers list.
  • We have providers of some type in each county in WA; but some counties do not have much provider choice. We are constantly working on that!
  • Voucher applicants may suggest a provider if there is no availability among the registered providers, or if they have requirements registered providers cannot meet. The team will reach out and see if the suggested provider is willing to take the voucher funding.
  • We can’t pay a family member OR ANY OTHER INDIVIDUAL to be a caregiver. The only respite we will pay for is from one of our Registered providers.

Parent to Parent (P2P) Connects Caregivers Statewide for Support

Posted on by Nicol Walsh

Family caregivers for children with disabilities and special healthcare needs may feel isolated or uncertain about where to seek help for their children and themselves. A place for support is Parent to Parent (P2P), a network that connects families to trained parent volunteers who have experienced a similar journey with their own children. In addition to resources and information, parents share personal support and encouragement.

A Brief Overview

Full Article

Families new to the disability world can find preliminary information and request help right away by filling out a short form on a website page designed just for them, hosted by The Arc of Washington: Getting Started/Contact Us…Welcome to our World.

The first P2P program started in Nebraska in 1971. Programs started in Washington State in 1980. A national P2P network was established in 2003 to provide technical support to the statewide networks, with a goal to reach all 50 states. P2P USA provides an historical timeline.

Washington has a network of P2P programs that serve every corner of the state. The Arc provides support to the regional programs and links them to national P2P resources. Families can go to arcwa.org to find a list of P2P coordinators, organized by region and listed under the counties served.

¿Hablas español? Para más información y hacer referidos, llama a su condado abajo: Coordinadores de Enlance Hispano.

Families can request a parent match 

When reaching out to the local P2P network, families can request a “parent match.” P2P leaders will locate a helping parent volunteer who has a similar lived experience and help the families get connected. From there, a supportive relationship can develop, where empathy, hope, and strength are shared.

Helping Parents cannot provide all answers, but they share insight, solidarity, and role modeling. They also share the joy and pride they’ve experienced while watching their child grow and achieve. A phrase commonly shared is: “I know, and I understand.”

In keeping with evidence-based practices promoted by national and state P2P organizations, the helping parent volunteers are training following a specific process and all personal information is kept confidential.

P2P services are free and include:

  • Emotional support for family caregivers of children with special needs
  • Referrals for community resources
  • Information sharing about disabilities and medical conditions
  • Family matching with trained helping parents
  • Social and recreational events
  • Training for parents who would like to become helping parent volunteers
  • Disability awareness and community outreach

Someone to listen and understand

Washington’s statewide P2P is funded by The Arc of Washington State, the Developmental Disabilities Administration (DDA), and the Department of Health/Children with Special Health Care Needs. Individual county programs receive funding from host agencies, county DDA offices, the United Way, local grants, private donations, and more.

The Council for Exceptional Children published a research paper about P2P in 1999. Respondents to a national survey reported the following benefits from participating in P2P:

  • Someone to listen and understand (66 percent)
  • Disability information (63 percent)
  • Care for my child (58 percent
  • Ways to find services (54 percent)

Statewide, various agencies and family-led organizations host local P2P programs. An interactive map of Washington State provides an easy way to locate information in English and Spanish about a P2P program in your area.

Another way to begin is to contact the statewide P2P coordinator, Tracie Hoppis, by sending an email to: parent2parentwa@arcwa.org.